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ectopics getting worse (Read 9382 times)
seffie
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ectopics getting worse
Jun 20th, 2007, 6:58am
 
Hi Everyone,
haven't posted here for a while but have been visiting & reading peoples posts. I feel for each & every one of you suffering with palpitations, unless you've experienced this yourself I think it's very hard to understand how terrifying they are.

I am currently experiencing the worst ectopic palps I have ever had. I barely had any for about 3 months then they returned & I seem to be having bouts lasting 7-10 days then they go away for about a week or so ( no set pattern ) then back again. Originally it tied in with ovulation & / or my period but now they just come when they want.

I am having around 5-10 per minute. During the 'pause' it feels like my heart is quivering. I have some runs of 3-5 ectopics one after the other so it feels like 'lurch/thud/lurch/thud/lurch/thud etc.
When they first started up again they only seemed to happen after eating or when I was at rest but now they are virtually all day. I know I am getting anxious about them & I understand that that will contribute but I just can't stand it any longer.
I'm sitting here with thuds & lurches & quivering & they are driving me insane. I want to scream with the frustration & fear.

I went to see my doctor after a run of pounding, racing palps & I told her about the increase in ectopics & she has referred me on for another 24 hour monitor. She said if they're particularly bad to go to the local hospital to see if they can ' catch ' them.
The other week I did this as they had been bad for afew days but the staff were abit dismissive & couldn't seem to understand why the doctor had suggested this. They managed to catch 2 or 3 but typically they had calmed down by then.
My GP then had to look at the tracing & he glanced at it & said yes all normal, I pointed out the irregular ones & he said just early benign beats as we'd expect.

My questions are
* I know RLR says that in a normal heart it doesn't really matter whether it's one ectopic beat  or several but can these back to back runs of 5 really be OK?
* if I don't get other signs of CAD such as breathlessness or chest pain does that mean that it's unlikely?
* how much can a short ECG tell a doctor about the health of someones heart, would heart disease show up on these or not?
* if they disappear for days/weeks/months does that mean they're more likely to be benign?
* I did some meditation earlier & they eased off but started up again after it, would that indicate they're just anxiety-related?

Sorry for so many questions but I'm feeling desperate & feel as though I have nowhere else to turn as I've been to the casualty & they didn't exactly encourage me to return if I had another bad bout & I've just got to wait for the 24 hour appt which could be months.
I have tried so hard to carry on & ignore them but they are so bad & getting more frequent & I just cannot cope with them anymore.
I know many of you suffer like this, please help me to cope with these, I am doing virtually everything I can to eliminate them but not stressing about them seems impossible at the moment.
Thanks for letting me vent.
Seffie xx
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beadbabe
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Re: ectopics getting worse
Reply #1 - Jun 20th, 2007, 7:33am
 
Dear Seffie
Oh I know how you feel you poor thing.
I have them too - runs of them all day and night. And all the time. Not just after eating.

They are still there even at rest. It is I agree very hard to not worry about them especially if you are unlucky enough to feel them. (Some people don't feel them!) I have beent o A&E many times and have spent a fortune on tests, but have really been told to get on with them.

Now... I am sure RLR will be along later to give you some medical answers but here's what I think. If you can find anything that abates them then practice it when you can because if that is meditation then it is your body finding its balance again. If I were you I would try to find time to do that a couple of times a day at least. Easier said than done. But I believe meditation has a cumulative effect on mind and body. I have just ordered some books on mindfulness to cure anxiety from amazon and am going to try that myself.

Do you know if you hyperventilate - I know RLR says this doesn't cause palpitations but I have it from other sources that it can cause them because it basically upsets your blood oxygen balance and can cause all kinds of other weird symptoms. So that is worth watching out for too. I get ectopics more when I am active and I believe it isbecause I am breathing inappropriately for that time.

My therapist said used to get palpitations and hers were caused by hyperventilating. ie. by sitting in a chair and hyperventilating she could bring them on at will. So that could be the case with you. the more we worry the more we breathe incorrectly for our needs.

As you'll see from my other postings I have had all sorts of weird heart palpitations - ectopics and racing heart episodes but no-one is bothered in the medical profession - only me!

best of luck
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seffie
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Re: ectopics getting worse
Reply #2 - Jun 20th, 2007, 8:41am
 
Hi Beadbabe,
thanks for replying so quickly. I really am at the end of my tether with them. I feel so angry & I know this is probably contributing.
I may not have been hyperventilating to start with but on Sunday when they started up again I know I was breathing too high in my chest & holding myself tense, so it may be that my breathing is making them worse. I know RLR talks a lot about the vagus nerve but I don't feel I have any digestive problems that would irritate it, maybe you can have digestive problems but not really know it.
I have just started taking a high quality omega 3 & am thinking about taking taurine as I have read that both of these may help with heart rhythm disorders. I know a lot of the medical profession have doubts about these kinds of things but I am desperate!
Thabks again, I have read many of your posts as your experiences seem very similar to mine & I can relate to what you're going through. I really feel for you too, I know other people just think we should just get on with it but when these are bad it is a real struggle.
Good luck with the meditation stuff, I need to start walking for exercise as I know that this can help alleviate ectopics & is one of the few things left I haven't tried.
Thanks Beadbabe!
Seffie xx
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saab
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Re: ectopics getting worse
Reply #3 - Jun 20th, 2007, 12:43pm
 
Hi Seffie

So sorry to hear that you are having a bad time with your ectopics. I know how terrifying it can be. I am sure that RLR will have some reassuring words for you today or tomorrow.

I can only say what I have read on this site and others -

- ecg' s can tell a lot even if they are short. They are as much about what they don't show as what they do show. That is to say, an ecg would show signs of heart disease and structural defects in the heart. If these aren't present, they aren't present.
- if your heart was seriously damaged, I would think it unlikely that the ectopics would come and go. When my GP spotted my irregular pulse (and sent me off to A and E), the first thing she asked was about blackouts and dizziness. In the absence of other symptoms and good test results, I think you have to accept (like I have to, though it's hard) that your heart is ok.

I have also read that whether you feel them or not is not that significant - ones you can feel are not worse than ones you can't. I once did the maths to calculate how many of these missed beats I was having a day - it was thousands.

RLR may correct me, but I believe he says he has never known a case of benign ectopics (which is what you and I and Beadbabe have been told we have, as I understand it) to cause heart disease or sudden cardiac death (which is what I fear, of course).

I read this on another site too - benign ectopics do not cause cardiac arrest. If we have had the tests and the doctors say we have benign ectopics then it very likely that that is what we have. I am sure you would be referred for more tests if they thought it was appropriate.

I really sympathise with how you are feeling. I spent a long time paralysed with anxiety about my heart, panic attacks, agoraphobia, the lot.

My only suggestion is that you try to work on the anxiety and see if the ectopics take care of themselves. Have you read any Clare Weekes book's? - "Self Help for Your Nerves" is really good. It was never away from my side when I was really bad. Best wishes.
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seffie
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Re: ectopics getting worse
Reply #4 - Jun 21st, 2007, 1:44am
 
Saab,
thanks for your post, I found it very reassuring although I'm still very anxious.
Today I'm trying not to get so worked up about them & see if that helps. Last night I know I kept holding myself tense & my breathing was all wrong so I'm trying very hard to relax (that sounds contradictory!)
Yes, I do have Claire Weekes book, I use it almost daily & have found it to be a real help in coping with my anxiety, To be honest my anxiety has been so much better but then my palpitations returned & of all the anxiety symptoms they are the ones that I just can't seem to cope with.
I just don't understand why they would virtually disappear for 3 months & then come back worse than ever. All of my test results have always been OK except for the treadmill one (possible signs of CAD ) & I can't get that out of my head as I know that if you have CAD then ectopics can be a problem.
I feel paralysed by this & feel too scared to go anywhere as they are just so bad.
Thanks again, really hope RLR has the time to reply.
Seffie xx
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beadbabe
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Re: ectopics getting worse
Reply #5 - Jun 21st, 2007, 3:07am
 
Hi Seffie
How old are you? And did they explain what the possible signs of CAD were? I don't believe they would have let you go away if they thought you were in any danger at all.

Your words sound like mine - over the last two days my ectopics are back with a vengeance and making me feel very ill, out of breath and dizzy. What I find hard to believe is that I have to put up with a problem into which there is no research, and no treatment that works, even though it is ruining my quality of life. Okay so they say it doesn't put my life at risk, but plenty of illnesses don't put your life at risk but there is research and information available on them. How can I go about a normal life if I end up having to sit down in the street, or hang on to lamp-posts because ectopics and racing heart come on so badly if I go out for a meal and then have to walk back to the car. This is just a problem that the medical profession are not interested in... no money in it I guess.

At least RLR is here to care and reassure us.
Best wishes
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seffie
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Re: ectopics getting worse
Reply #6 - Jun 21st, 2007, 4:46am
 
Hi Beadbabe,
I feel exactly the same as you.
It really does affect your quality of life, I guess some people are better able to cope with these but we're all different. As they've been so bad just lately I'm seriously considering taking a beta blocker but I've always thought that these worked better for racing, pounding types of palps rather than ectopic ones-maybe RLR can explain how they help ectopics. Not keen to take these though.

I think for people who maybe aren't predisposed to anxiety any kind of benign palpitations are much easier to cope with but I have had health anxiety virtually all my life so of course no-one really sympathises( not that I want sympathy-I don't) but I just wish people could understand & accept that for me, this is terrifying & difficult to cope with.

I have always found people to be very scornful of mental health issues & the bottom line is that anxiety & the many forms it takes is a very misunderstood & mocked condition by the general population.
I know I'm a 'heart-sink' patient because I know that when my doctor sees me it's often very hard for him to help me. Most times all I need is his understanding & to be able to talk it through with someone who has the relevant knowledge but I think I've worn his patience thin & so I don't really feel I can talk to him anymore without feeling I'm annoying him.

I really try not to discuss stuff with family & friends either as I know it's boring for them. I have 1 friend who also suffers from anxiety stuff & we support each other but try to make sure it's practical help as well, not just tea & sympathy-oops! better make that water as I've given up tea!!!!
It's a daily battle but I'm determined to do all I can to get my anxiety etc under control again & learn how to live with it so it doesn't affect my life as much as it is at the moment. I am doing a lot of stuff to help it but I know it'll take time & there are still things I could do like exercising regularly.
I'm 44 btw, & have been in perimenopause for approx 2 years-not the best time for someone with health anxiety!!!!
Anyway, thanks again for your support & understanding, sorry yours are playing up too.
Seffie xx
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beadbabe
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Re: ectopics getting worse
Reply #7 - Jun 21st, 2007, 5:27am
 
A lot of us here have a lot in common. I too have panic attacks, anxiety and health anxiety so it's hard to deal with. I am taking a beta blocker but it doesn't help at all. It doesn't even stop the pounding /racing episodes because it is a low dose. When I took a higher dose the ectopics were worse. I don't know why I am taking them really.

Best of luck and talk to you again soon no doubt
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