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Wits end with these palpitations (Read 11521 times)
beadbabe
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Wits end with these palpitations
Jun 22nd, 2007, 1:45am
 
Hi there
I have to post because I am at my wits end with these palpitations. Since thinking my ectopics were easing off a bit they are back and terrible. I am now only getting them in runs of six to eight, and every minute. In addition, any minor exertion sends my heart into turmoil - eg. went downstairs first thing to get something and came back upstairs and my heart was going mad - I timed it at 110 and all I had done was get up and go downstairs and back up again. That can't be normal. And if I move from a standing to sitting position or vice versa that is enough to spark ectopics that go on and on for 30 seconds or more.

How can anyone be supposed to live life with this? I have tried so hard and now don't know how to cope any more.

How do I know that I haven't got some problem with the electrical circuits in  my heart. At one point my cardiologist mentioned that if a very fast heart ryhthm became more frequent then he would send me for more investigation for catheter ablation therapy. I don't understand it - a year ago I had no heart disturbances and I just seemed to wake up one day with it and now, it seems, that is it for me.

A very sad bead  :'(
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TOOTS
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Re: Wits end with these palpitations
Reply #1 - Jun 22nd, 2007, 3:05am
 
HI
I haven't posted for quite a while  and maybe that is the measure of my situation really - I totally sympathise with how you feel but it seems these palpitations do  have a way of taking over our lives.
I have had them for a long time many many years in fact, had all the tests and often re assured by the outcome of the tests and through the years have had massive gaps where I didn't get them.
They kicked in again quite badly about seven years ago and put it down to the menopause and really since then I have tended to get by with re assurance from RLR and this site - I read so many posts where I think that is me that is how I feel but  dont' tend to come onto the site so much but when I read your posting  my heart went out to you because your right - you can be enjoying life to the full and then these HORRIBLE  palpitations come along and what is more annoying they come in different shapes and forms - I can get the eptopics the fast heart beat, the skipped heart beats in so many different places - I can go through a couple of weeks of nearly nothing and start thinking good thoughts, feel happy and think wow I am having a good few weeks here and then wham they are back again and I go right down - I am going through a bad time at the moment and my biggest fear is being on my own with them and something horrible happening to me - I know it won't but Im afraid when these things get a hold of you  they do bring you down and we are scared so the highs are extremely high and the lows are very low and you think how can I go on like this.  I really do think they affect everybody at some point in their life and some can just   forget they even happened  but others like everyone who visits this site  they become a major part of  life -  because I have had them for such a long time and nothing has happened to me then that is re assurance in itself but I wish and wish that I didn't get them - I know I am too aware of what my body is doing, always have been and that doesn't help - I know I have problems with my digestion and that doesn't help. In  a way I feel vulnerable because of the palpitations they are cunning because they weaken our physical and mental  resolve to tackle them.
You will get over todays feelings - just remember here I am safe and well after many years of them and here we all are on the site  to support you as well.
Take care.
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seffie
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Re: Wits end with these palpitations
Reply #2 - Jun 22nd, 2007, 4:20am
 
Hi Beadbabe & Toots,
I don't really have anything to say that will help you, other than I do know exactly what you're going through. I'm sitting here typing with my heart lurching, fluttering & thudding & trying so hard to accept it. I need to go to the supermarket but am dreading it as I know my anxiety will be raised just by being there.
I've just started taking Omega 3 & taurine in the hope they might help a little. I will let you know how I get on with these.
Like both of you I am frustrated with how they interfere with my life. I know other people will say don't focus on them & just carry on as normal but when they are particularly bad I just cannot do that-& believe me I have tried! I am supposed to be going out with friends tomorrow for a meal but if I go
& I'm still having the palps-which seem to be worse when I'm sitting down & eating-I just know it's going to be an ordeal-where's the fun in that?

Toots, I have had them on & off since my late 20's but never anywhere near as bad as they are at the moment. Mine too really took off when I started peri-menopause & I feel that if you have a tendency to getting them then hormones will just make them worse.

Has anyone had any succes with beta blockers reducing ectopic palps? I know Beadbabe you said they didn't help you but I am so desperate I just can't believe that there isn't anything out there that is safe & works. I could cope with maybe 20-30 a day but feeling them virtually every minute all day is wearing me down.
Sorry I can't be more help-just knowing you're not alone in this helps a little I guess.
Seffie xx
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beadbabe
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Re: Wits end with these palpitations
Reply #3 - Jun 22nd, 2007, 4:49am
 
Thanks for replying.
Seffie - I know I said they havent worked for me but they do work for some, so they are worth a try as they are very safe. They have been used for years so it's not as if it's an untested medicine. And if they don't work you can stop them very easily.
Bead
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saab
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Re: Wits end with these palpitations
Reply #4 - Jun 22nd, 2007, 4:53am
 
Sorry to hear things are so bad for you at the moment. It really is paralysing when these things take over your life. I was always a 'pull yourself together' sort of person who just got on with things - but when I was mega anxious about my heart all my logic and determination just went out of the window. I'm sorry I can't really offer anything other than sympathy and support. I wish I could wave a wand and make them go away.

When I was having a big anxiety spell I used to read a printout of statements to help you cope with anxiety. I may have posted these before but here they are:

http://www.anxietynetwork.com/helpcope.html#helpcop1

The Anxiety Network is worth reading through. It has quite a lot of helpful info. Best wishes.
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RLR
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Re: Wits end with these palpitations
Reply #5 - Jun 22nd, 2007, 10:44am
 
What do you think your heart rate should be after going downstairs and back up again? If you are presently in a sedentary lifestyle and don't perform aerobic exercise on a very regular basis, then the body will respond as it needs to in order to compensate for exertion of any kind. A rate of 110 for such circumstances is not even remarkable in my opinion. People who exercise regularly achieve roughly 80% of maximun that is roughly 160 to 185bpm, a value that decreases over time due to conditioning.

As for the benign palpitations, the frequency does not alter their designation. They continue to be harmless other than the emotional trauma they can certainly exert. You should not look upon the circumstances with despondency, however, because the situation is certainly managable through medication or other intervention. I have also encountered a number of patients who have experimented with various fish oil capsules, vitamins, minerals, supplements, etc. in the attempt to reduce the presence of the palpitations. Again, my comment with regard to these products is that they can create tremendous GI disturbances, which in turn will increase rather than decrease the problem at hand. Not that you're using these products, just a reminder.

Persons with anxiety continue to feel overpowered by the sense that something physical is wrong with heir heart, despite all tests to the contrary. If you had an "electrical circuit" problem, this would have been evident in the diagnostic tests. We don't need to see the occurrence of an abhernt ryhthm or even have you experience a change in heart rhythm for us to see the underlying cause. This single point frustrates patients more than any single aspect of their situation. They become convinced that we must see the evidence to know of its origin. Problems associated with cardiopathology are not of any nature whatsoever that we need to see the problem in motion to know it's there. There are underlying signs that appear on testing that tell us a problem exists, even in cases where patients have experienced no prior symptoms at all.  

My suggestion here is to seek professional services that can help you with your emotional response to the palpitations and ways to help you better cope until it passes. This is, by the way, not a permanent condition and most often self-resolves.

You're going to be fine.

Best regards and Good Health
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Best Regards and Good Health
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Kathryn
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Re: Wits end with these palpitations
Reply #6 - Jun 23rd, 2007, 1:29am
 
Hi Beadbabe

RLR is right, my anxiety management classes helped me alot, they are trying to sign me off which I do not understand as they said they had put me forward for CBT, but obviously they didn't!!!!

My heart rate races to 110bpm sometimes, I think it also depends on how tired you are, I mean if your really tired it's more of a effort for your body to do anything,  You also sound like you are very aware and pre empting situations and thats not good because you cause the heightened levels of anxiety before you even start.  

When you are anxious everything tightens up, all the little muscles etc inside are tense, I bet you are sitting reading this your shoulders up and tense, and you didn't even realise it, well when all your insides are all tense nothing can move smoothly, to wind gets trapped and we all know what happens to our vagus nerve! your digestive system is tense and subjected to more levels of adreneline than usual so this also causes irritation of your vagus nerve.

Do you sit whilst eating? and is it huddled on a sofa or up a table? do you get up straight away? are you eating 6 smaller meals rather than 3 larger ones?  

All these do really irritate things.

The other day this has nothing to do with palpitations or anything, but my friend up the school said her daughter had head lice so I checked my daughter and she had a few eggs, so treated all the family, but I hadn't had a itchy head before but as soon as my friend mentioned headlice my head started itching - and I had my mum check my hair and I had nothing, so it was all in my head (excuse the pun) - I hope you can see my point, I subconciously did that to myself, making my head itch, it's amazing what you can do to yourself, just through thinking!

Try to relax, I know how difficult that is when you have them.  your comment about 110bpm and it not being normal goes to show you are panicking about every little change in your heart, if you heart doesn't do what you think it should be doing you panic, I've been there, I think my heart shouldn't go that fast after climbing stairs, but how do I know, maybe it should, perhaps I was tired, or I have had a particulary stressful week.  But I still let it panic and worry me and end up making the whole thing worse.

I wish I could listen to myself sometimes!  Huh

Hope you feel better soon

Kath x
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beadbabe
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Re: Wits end with these palpitations
Reply #7 - Jun 25th, 2007, 1:53am
 
HI there
Thanks for all your help.
I am now taking an SSRI and seeing a CBT counsellor (very expensive but hopefully worth it, there's no suggestion of getting it on the NHS where I live). I have only seen her twice so far so it is early days. The SSRI is not helping at all so far - in fact I feel depressed as well now whereas before it was just really bad anxiety. But maybe I am depressed because I expected medication might help.

I am having to write down my thoughts and feelings at time when I feel anxious and panicky and surprise surprise it is always to do with my heart or feeling dizzy. But the physical feelings come before the thoughts - I am analysing it and it is always the physical feelings that come first. Is it possible if you are stressed for your body to produce symptoms before your mind clicks in to whatever is making you anxious. And then you notice sensations and then that goes on to produce a vicious circle?

The thing I can't get out of my head though is that the doctors have said I will have to live with the heart problems. But our friend RLR gives me hope that  these problems can go away. I don't know who t believe.  I want them to go away, I don't want to live with the problem of feeling ill every day. And I can't understand how I have woken up one day with two different types of heart ryhthm problem. Ectopics AND problems with racing heart that comes on out of the blue (sometimes I am just sitting there and I get a run of 5-10 beats that are so fast in succession I can't help but jump when I feel it). Other times minimal exertion brings on tachycardia of 200bpm that lasts up to half an hour. But apparently I did very well in the treadmill test without any weird palpitations being brought on - just ordinary high heart rate that didn't feel at all weird of my ideal max heart rate of 175 or so which I was able to sustain really easily, so I don't believe I am really unfit or too sedentary (I am on the go all day with kids and housework).

NONE OF THIS MAKES ANY SENSE TO ME! (sorry for the caps but I am feeling so frustrated and depressed with it all.) Sorry for all this waffle - I just am struggling getting my head round all of this and I have this horrible feeling that my life is being wasted and I need to get on with enjoying it. I have always felt how precious our lives are and how we need to enjoy every minute but I am so frustrated that I can't get back to my normal life that is undisturbed by feelings of ill health.
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saab
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Re: Wits end with these palpitations
Reply #8 - Jun 25th, 2007, 2:46am
 
Sorry things are so difficult at the moment. I know how you feel, when things were really bad for me I was just totally beside myself with anxiety, felt physically and mentally dreadful. I hope the therapy helps. It can take a while for medication to work so I would try to persevere with it if you can. Everyone is here to give you support.

I understand your frustration - it was the ectopics that made me anxious to start with, but then the anxiety feeds the ectopics and makes them worse, I guess. You sound like you've had a much more thorough testing than I have -  I have had an ecg and an overnight stay in A and E on a monitor, but no stress test or anything.

If there really was something wrong they would have found it by now. But unless you've had strange rhythms, missed beats, thumps in your chest etc. it is hard for people to understand how alarming they are. If you could only have a break from the physical symptoms it would give you chance to work on the anxiety. I hope you feel better later.
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seffie
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Re: Wits end with these palpitations
Reply #9 - Jun 26th, 2007, 12:21pm
 
Hi Beadbabe,
just wanted to say that I feel exactly the same as you, when I used to go & see a CBT counsellor I used to say to her that if I didn't have the palpitations I wouldn't be anxious. Last week when my ectopic beats were every minute all day my anxiety was through the roof, they have eased up a little but are still there & now seem to have changed. They have eased up a little but now I have started to get weird beats & today I went to pick up my son from school & my heart went in to a chaotic rhythm for about 10-12 seconds, I coughed but it didn't make any difference then coughed again & it raced for abit & then went back to normal. I was really freaked by this & got home as quickly as I could. Then I sat down & thought about this & remembered that I have had this before many times but just not this year.
I used to discuss it with my CBT counsellor & she said that I should just relax when it happens because my heart will revert to normal rhythm whether I do anything or not.

Sorry, I've gone off the point abit, but what I'm trying to say to you is that even though you may feel that the palpitations cause the anxiety it may be that something else such as stress, bereavement etc caused the original anxiety which then manifested itself in other anxiety symptoms such as palpitations which then kept the anxiety going!

I am having very similar symptoms & frequency to you so please know that I understand & empathise completely. I too feel very frustrated & down about them & how they affect my quality of life.
I am waiting for another 24 hour monitor & there are things I want to get clear once & for all & then I will just have to learn to live with these things & learn how to manage anxiety so that I can enjoy life.

I agree that unless you have suffered from these it is very hard to understand just how distressing they can be. I know some people think that I should 'just pull myself together' but if it was that easy then I would have done it. However, I am doing as much as I can to manage my anxiety & I feel that I am on the right track. I can now cope quite well with other anxiety symptoms but my palpitations are still the hardest to deal with.
Hang in there Beadbabe, we are here for you!
Seffie xx
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