angiebaby
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Posts: 261
england
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Hi there, as you may remember i was re referred to ENT by the neurologists as they couldn't find anything wrong and a reason for my dizziness and problem with my ears. Just a refresh of symptoms: ears shutting off, tinnitus, going deaf in one or both ears independantly or together. Feeling of blood being shut off from my neck up, sometimes this feeling when standing, sometimes when lying down, turning my head, for no reason, leaning forward with my neck, laughing or coughing. Feeling of fullness in ears and under ears. Sinus pain. Ears affected by a certain 'tone' e.g. the hoover drives it mad, going in and out repeatedly until the noise stops. Whoosing sounds, echoing sounds. That is a broad outline of symptoms as well as being off balance and walking into things and the dizziness that sometimes is totally unbearable. Had another hearing test today, which was still normal but worse than the last one. I did tell them that i had a migraine last night, head and facial pain was unbearable and also felt very sick, so this might have affected my ears today as they have been bad all day. I then saw the consultant. Explained my symptoms, or tried to, and he didn't seem bothered and was quite sharp with me, he even read my notes and said that a special manouvre was done on me at my last visit by the last doctor!! Both myself and my husband told the consultant that the previous doctor had not laid a hand on me at all, so i just wonder what other lies he had written in my notes. All he did have me have a hearing test and look in my ears! I explained and carried on telling him my symptoms and as i carried on all of a sudden his face lightened as if he suddenly believed me, realization dawned on him as if he was thinking 'hang on a minute perhaps there could be something here after all'. After this he became 'nice', he was totally different again and much nicer and approachable. He said that this was definately not anxiety related which is what everyone has been putting it down too. It was definately not menieres disease, which was good, it was definately not down to my neck or my sinus's. He did not know why my ears 'shut off' and act the way that they do, no idea, fits no catagory at all he said. But he is pretty sure that i have benign positional vertigo. Now i remember one of your previous posts to me suggesting that it could be that, and i looked it up on the web. I know that it does sound plausable, although i have other symptoms too which he cannot account for, but everyone is different. Anyway, sorry long post, he is now sending me for more tests, to find out if it is BPV. He said that he is certain that i will test positive to these tests, then he will see me again following the tests and apparently there is not much of a waiting list for these to come through. Obviously now because i have been diagnosed with GAD, anxiety, phobia and mild depression, i am worried about the tests. I know that they will not be invasive, but i also know that they are going to do things that will promote dizziness, this scares me of course. I believe that they may spin me in a chair, ok i guess even though i know i will panic, may tilt me on a table, even more scarey and then the possibility of the 'espley' manouvre which i think he was talking about. If i were to have these tests two years ago i would have flown through them without much problems, but because of my current mental state i am, to say the least, worried. Would it be possible for you to take the time to explain to me what they will do at me and how it will be for me please to put my mind at rest a little. Thankyou for taking the time to read this 'epic'.xxxxx
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