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Help again - been to doctors and very concerned (Read 26542 times)
MissL
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Help again - been to doctors and very concerned
Nov 24th, 2008, 11:51pm
 
Hello all,

Well the palps are still there everyday, ranging fro about 5-30 a day, hard thumps, sometimes painful. I went to the doctor about it yesterday evening as I am getting increasingly upset about having them - and now I am even more scared. She is referring me for a 24 hour monitor. When I asked if she sees a lot of people with them she said "sometimes.. not having them as often as you though" - great!! And said they would be looking for arrthmias, which can be fatal  :'( - Also my blood pressure was high again (131/84) and this seems to be happening over the past few months - I am only 26 and never had high blood pressure before. I am on the pill so of course I am worried about that too.

I woke up feeling sick this morning - I thought I would be reassured at the doctors but it has made me feel worse - the 24 holter isn't until 22 december and I don't know how I am going to get through the next month. I am supposed to be going skiing with my family and I usually love skiing but I don't want to go, I am so worried I will suffer a fatal arrythmia on the slopes.

I just want to know what is wrong with me. She didn't even mention anxiety and it was clear (I thought) that I was anxious - so now I can't even believe it is that. Is having them everyday that often? I guess it is for normal people... I feel I can't live my life anymore..

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beadbabe
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Re: Help again - been to doctors and very concerned
Reply #1 - Nov 25th, 2008, 8:17am
 
Hi there
This is meant to put your mind at rest... I have thousands every day and have had thousands per day for over two years now. Even on a good day I have two or three per minute. I have been told that this is nothing to worry about because my heart is normal. I highly suspect that if you are only having a few per day this is also nothing to worry about. (easier said than done.) But what I am trying to say is, when you are told there is nothing to worry about, it could be worse in terms of sheer numbers of weird heartbeats and even then it would still be nothing - just annoying and bothersome - not dangerous!

Just sitting here I have had several handfuls of ectopic beats, so yes they are there all the time for me. I am sorry you are having a bad time with them - get the test and then try as hard as you can to believe the result and what the doctor tells you. We all know the worries you are having. I imagine RLR will be along some time soon and fill you in on a medical level.

bead  Wink
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MissL
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Re: Help again - been to doctors and very concerned
Reply #2 - Nov 25th, 2008, 8:24am
 
Thank you for replying beadbabe.

Are you palps noticeable (i.e. the thump etc - which I get) or just in your pulse? That must be awful for you... Mine come out the blue and just immediately make me nervous. I am so tired of them - as I am sure we all are. I have tried and tried to relax and believe they aren't serious - but nothing works - so of course I have decided I have something seriously wrong with my heart Sad
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beadbabe
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Re: Help again - been to doctors and very concerned
Reply #3 - Nov 25th, 2008, 11:53am
 
Hi again
I know... I understand. and in answer to your question, I don't need to take my pulse to know they are there. I can check it and they correspond, but I feel them quite distinctly in my chest - bumps, thumps, flultters, you name it!
What you are describing sounds just the same.
You will be okay, you know.
bead x
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RLR
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Re: Help again - been to doctors and very concerned
Reply #4 - Nov 25th, 2008, 5:11pm
 
Well my goodness! I think you've let your fears run away with you and it's not an uncommon situation for folks with anxiety.

Your problem is not your heart, but rather your fear that something terrible is going to happen to you as a consequence of benign palpitations. The other primary concern is that you remain convinced that in order for the palpitations to be present and becoming more frequent, there must be an underlying physical cause. You have no medical data to support your contention, but it's certainly convincing enough for you to return to your doctor in search of a cause.

It's critical for you to realize what sort of patterns become established for people with health anxiety. You feel compelled to seek reassurance from your doctor and begin pressing for tests and answers. Some physicians then feel obliged to continue looking, despite the fact that they know the problem to be harmless in nature. They may respond by saying "well, maybe it's some sort of variant of an arrhythmia so let's get you hooked up to the monitor because some arrhythmias are deadly. A statement like that is all a person with anxiety needs in order to accentuate their fears and hoplessness.

Your posting says a great deal about how you rationalize the problem and it's important for you to understand how the mind works relative to the circumstances. You've simply reasoned that the change in character of the palpitations represents something wrong and this presumption is based purely upon your understanding of the problem.

You do not have heart disease of any type and the tests will turn out negative. It is important, however, for you to continue with them in order to gain the reassurance you now need as a consequence of establishing a false belief. You are now forced to undergo testing to quell the fears that are now pending. You're saying to yourself "there's no way this can be happening without a problem with my heart of some type and they're going to find it too late.

You're not going to suffer any type of arrhythmia, most especially not a fatal one, as a consequence of vagus nerve induced palpitations of the type being experienced. The signal which stimulates the heart in this manner cannot interfere with, or otherwise disrupt, the normal sinus pacemaker of the heart. It is medically impossible for such a thing to happen. And simply because your physician has not observed a case wherein palpitations of this type are more frequent, does not suggest that you are the standard by which the circumstances are judged.

I have observed patients with as many as 1400 palpitations per hour or greater and none of these patients suffered any physical compromise as a result. Again, these palpitations do not interfere with the ability for the heart to do its job properly and the sensation is far worse than the actual impact at the level of the heart.  

Now, I have to reiterate once again what I've said countless times on the forum; I've been a practicing physician and specialist for more than 40 years now and not once in all of those years have I even heard of one person sustaining any type of cardiac event or damage to their heart as a consequence of palpitations of the type you are now experiencing. Not even once. There is no literature to support such an instance as well. Surely you can't believe that somehow your case is different, that you have a unique problem that must be due to something physically wrong with your heart. You'd stand a better chance of winning the lottery before you would actually experience a physical problem as a consequence of benign palpitations.

My suggestion is to continue with your tests and then seek out a professional who is well established in dealing with anxiety disorders and begin working toward the discovery of thinking patterns which are causing your outlook to become severely diminished and also altering your lifestyle in a detrimental fashion. It is your fears that is driving the palpitations to greater frequency and intensity, not an actual underlying physical condition. You are misinterpreting what is actually taking place and perceiving it as a sign of imminent danger which is absolutely not the case.

Incidentally, blood pressure readings of 134/84 do not constitute hypertension in any manner whatsoever, regardless of what your normal readings otherwise indicate. Again, this is a misconception on your part.

I think you need to take a really deep breath and calm down. Your heart is fine. Look, we don't just send folks home and say we'll see you next month if we had any inclination that some type of problem actually existed that could pose a health risk. Surely you don't believe we're that incompetent as a profession.

You'll be just fine. Take it easy and feel free to go skiing with your family. Absolutely nothing bad is going to happen to you.

Best regards and Good Health
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MissL
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Re: Help again - been to doctors and very concerned
Reply #5 - Nov 26th, 2008, 12:57am
 
Thanks RLR - that is most reassuring. Once I have had these tests and (hopefully) got back benign results, I am going to work on my anxiety. I think the anxiety and the ectopics have become circular for me - chicken and egg.

Thank you again - any problems with the heart are enough to make anyone anxious I fear, let alone a nervous person like myself - but being able to have someone rationalise your fears, when you are unable to to that yourself, is really helpful. I just need to learn how to do it!
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carol
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Re: Help again - been to doctors and very concerned
Reply #6 - Nov 30th, 2008, 10:38pm
 
This kind of palpitation feels horrible, and it's hard to believe it's not serious just because of the way it makes you feel and the fact that it's your heart. The only way I got mine under control was to work on my anxiety -- if you can get to the point where you truly believe they will not harm you, you will start to feel them less and they may even go away. It worked for me -- I still have the odd one, but nothing compared to when I was highly anxious about my condition. Easy to say, hard to do, but it really is the only way. I wish you the best of luck! I'm confident your holter will show absolutely nothing wrong at all, like almost everyone here.
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MissL
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Re: Help again - been to doctors and very concerned
Reply #7 - Dec 1st, 2008, 1:10am
 
Hello!

I went away for the weekend and guess what - friday and sat I hardly had any - like felt about 1-2 each day! I was so happy, I guess I was relaxed and barely thought about them. The funny thing was I started thinking about them sunday lunchtime (was talking to my boyf about how I hadn't had them) and then I got them! About 3-4 over a couple of hours. But told myself not to stress and didn't get them all evening!

Maybe it is anxiety that makes them worse- shock horror! Anyway, just wanted to say for the moment I am feeling abit better - until the next bad day! (see, must stop this negative thinking...)

I guess I find it hard to understand how earlier in the week I had such bad days with about 30-40 palps and awful ones, to hardly anything?
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MissL
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Re: Help again - been to doctors and very concerned
Reply #8 - Dec 4th, 2008, 3:53am
 
And they are back  :'( - I seem to get them in social situations a lot too - I guess in back of mind I am worried and annoyed about getting them when I am out and trying to enjoy myself - then I get them and get really upset and feel like an evening is ruined Sad

Has such a good weekend and now they are back, just feel so down...
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beadbabe
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Re: Help again - been to doctors and very concerned
Reply #9 - Dec 4th, 2008, 4:37am
 
Hello
Don't feel down - you know they CAN go away. work on getting back to that lovely feeling when they are not there. If you can have periods without them, that is so great, and means you can get there again, or at least, have many periods without them.
Hurrah - try to work things through - I know it is hard to do, but we are all trying on here to do the same - so you are in good company
Smiley
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MissL
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Re: Help again - been to doctors and very concerned
Reply #10 - Dec 4th, 2008, 5:37am
 
Thanks beadbabe - you are right - I should concentrate on the positives. I guess I feel a bit like a ticking bomb waiting for my 24hr holter thingy on 22nd Sad - just want to know if I am ok...
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Steff1573
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Re: Help again - been to doctors and very concerned
Reply #11 - Dec 4th, 2008, 6:04am
 
I understand how you feel...  But waiting like a ticking bomb for the 24 hr holter, is not worth all the worries and frustration.  The holter will probably show the palpitations, but the overall 'results' will still be benign.  

But I can say I do understand and I HAVE been there!  Still am some days.  I remember waiting for my stress test/echo.  I would think to myself: "I just need to know if these are benign - and the waiting is killing me, because I need to know what is wrong."  Well, guess what?  I waited, I worried, I anticipated the worse......  I got the results: "Benign pvc's" and what happens next?  I STILL worried, even though I got the good news I wanted.

You see...  Us folks with anxiety, preferably health anxiety worry regardless of the word "benign."    The key to living is to stop worrying.  That is extremely hard when our brains are so use to living in fear.  

I guess my point in all this, is try not to worry about something you have no control over.  You know you have palpitations and that they are harmless.  The 24 hr holter  will not show anything new.  Once your Cardiologist tells you that: "yes, you are having pvc's, but they are benign because your heart is healthy"  then tell yourself, "Okay, I have been to the Dr's, had the testing, and they can't find anything life threatening.  instead of wasting years worrying about, "Well what if they missed this, or what if I am different, or what if this turns into something else."  STOP YOURSELF from those neagtive thinkings and work on the anxiety.  And I promise you that you will feel so much better.

Right now I am getting pvc's every 3 heart beats.  I would give ANYTHING to have 5-30 a day.  I am not discounting what you are feeling, because I know for some people feeling ONE is hard.  But when you have them this frequently (every 3 beats or so), then you learn to live with them.  Learn to understand that regardless of frequency, no harm has succumbed to me or others.  

But worry, fear, sitting on the edge of your seat in anticipation of getting more palpitations is what fuels the fire, trust me!

Please try not to worry.  You will be OK!  Our Dr's have seen many patients with these and they do testing that is based on a strict set of rules...  When they can't find 'disease' as the medical equipment is set up for, then we really have a negative test for disease.  Are the PVC's/palpitations still skipping away?  YES...  But are they a death sentence?  Are they harmful?  NO.....  If they were, we would be getting treatment.  They are benign in someone with a structurally normal heart, which we all have.

I know I am being longwinded here and repeating myself.  But I have ruined over a year of my life worrying about these.  Some days I still get very frustrated with the frequency of these, but I know I have had these all this time and nothing bad has happened.  My tests have been OK, despite these pvc's and my Cardio reassures (Plus RLR) that these are benign.

I often wonder...  Well WHY can't they find a CAUSE.  Surely something is causing this!  Well, from the outside and by medical testing you can't "Find anxiety"  It doesn't show up on any medical blood test, MRI, echo, holter, etc.....  It's all from within.  And THAT is what we must work on.

Wishing you the best.  Do something fun for yourself.  But please do not sit there and worry about waiting to have the holter done.  That will not change anything.....  Start living!  Hugs...

Steff
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MissL
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Re: Help again - been to doctors and very concerned
Reply #12 - Dec 4th, 2008, 6:17am
 
Thank you! That was a great post  Smiley

You are right - no point worrying about what will probably be a negative test, I am determined this must be the end of it - I can't keep going to docs and not believing im ok, or keeping going till I get a 24 hr test and then worrying the doc is sending me cos there is something horribly wrong with my heart!!! It is a ridiculous cycle. I have to accept even though I don't think I am stressed, I have this underlying constant anxiety which must affect your body surely? I think this has contributed to my higher blood pressure recently too.. Sad
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Steff1573
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Re: Help again - been to doctors and very concerned
Reply #13 - Dec 4th, 2008, 7:38am
 
Yes, see try to think positive.  Just a minute ago I was cleaning my house... My heart starting skipping 'every other beat' while I was doing so.  I had 2 choices:

1.  Start worrying and sit down and forget about cleaning

OR

2.  Don't let them ruin my day, and keep cleaning and ignore the stupid pvc's.

I chose #2.  WHY?  Because I know they are harmless and I am not going to let them stop me from doing things.  I just go with the flow when I get them.  Sure, they stop me in my tracks but I just acknowledge them, and move on.  Not easy at first, but over time it gets easier.

Now if I chose #1 my anxiety would get higher, and I would feel like crap the rest of the day.  I have been there and I am not choosing to go there again.

So, you see.  Us folks who want to be in control, HAVE control when it comes to our thinking patterns.  We can choose to be in control and push those negative thoughts away, OR we can 'choose' to succumb to the negative thoughts, which then makes us feel FURTHER 'out of control'.  The choice is ultimately OURS.  Not our Dr's, not our friends, not our spouses, or whomever.  it's ours to take control of.  Noone else can do it for us.

We expect our physician's to cure us, to give us all the right answers and then we will feel total again.  Simply not true.  They do their jobs based on clinical view of the patients, medical testing and try to give reasurrance when all is 'benign.'  What WE fail to do is 'believe in them and trust them' depsite the continuation of symptoms.  This leads the physician and patient to become frustrated.  And when the physician gets a little irritated and says, "These pvc's are benign and you have to come to terms with that" we feel even more frustrated because we think they do not care.  This also is not true.  They are doing their jobs in looking for disease.  When none is present, it is not their jobs to be our counselors.  And that is why RLR is present on this board.  

He tells us WHY they occur and HOW they are benign.  he also helps us to come to terms with underlying anxiety and presses time and time again to 'look a bit deeper'.  He is so right!

The mind is the most powerful thing out there!  I probably have had pvc's all my life.  Maybe not to the extent I do now, but I know I have had them here and there.  once I started feeling them, I became focused on them, because well it is my heart doing this.  I think this made me become overly sensitive and thus I feel them all the time now, because "I am looking for them."  This of course causes me to become aware and in turn I feel anxious.  

Even though I was cleaning and had pvc's, doesn't mean I wasn't anxious about them.  Of course I am!  But over time, you can train your brain to reverse the anxiousness.  

There are some people who walk around all day with high frequency pvc's, and they do not even know it.  They still live fully functional lives, despite the oblivious of pvc's.  Yet, they are no more dangerous than the ones we get and WE who feel them have had medical testing.  We know our hearts are healthy, yet we continue to worry.

This cycle will never be broken unless we allow ourselves the freedom to start living.  

A quote from RLR, which may not be word for word:

"Ask ourselves what is robbing us of the very life we're all afraid that we're going to lose"

That is so true!

Steff
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MissL
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Re: Help again - been to doctors and very concerned
Reply #14 - Dec 5th, 2008, 1:03am
 
Thank you! I know I have to be positive and it all lies within me to do so.... I just am finding it tough at the moment. I went out to dinner with my dad last night and had them constantly... (guess was rushing to get there. but I tried to calm down Sad ) - also have been having them a lot this morning, as soon as I got up. I HATE them. I am going back to the old "feeling the pulse" and taking my blood pressure constantly too, which is bad...

I wish I could get to the place you are Steff, but I just can't get my head around that these feelings are benign, it is just too scary when it happens Sad

I am just having a bad week I guess... I keep hearing my docs words from a few weeks ago when I asked her is having them this often normal and she said no Sad
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