richie
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hi bigcountry great news. very good to hear/read. Keep up this state of mind. Ive been there only for a very small amount of time and then my mind body played increasing tricks (more and more chestpain when doing anything and the skin burning)on me and finally I cave in. its tough sometimes, so hang in there
George, In a way it is strange how medicine sometimes work. at least, in my country. I'm not alone in my assumption ( my wife , friends and family too) that its too much about what I dont have, but less about what you do have. When I got diagnozed with CHV, which is not acute hyperventilating , so not easily noticed as such, it was on my own instigation. When i visited my doc several times and the ER for the 2nd time I said, I start to believe its not my heart but it must be something, could it be CHV? mistake number 1. never say to a doc in my country what YOU think you have. from that moment I asked it, it took almost a year they tested me finally for it. and I was right. Then after that diagnoze, nobody did anything with it, cause now they were convinced it was of no use in my case cause it was all anxiety. i've had the same with my eye, double vision rose in a few months. Well it was nothing all over again, and in the end , again after I said this isnt normal, or only when i panic, its 24/7 there ,isnt there more to it. finally I got referred to an orthoptist and eye doc and then alarmbells went off. I got screened for a tumor, and in the end they now still think its congenital 4 cranial nerve problem. So again its like I have to diagnoze it myself. In my case there is a genuine feeling that doctors spent time and a lot of time telling me what i dont have then explain what I do have. even anxiety and what it does didnt get explained. When I had and have disturbing chestsymptoms I never got told I had skipped heart beats and where the pain did come from. the only thing I heared was ,its not your heart what you feel. its nothing. then finally I found this site and not long after that a substitute retired doc which by coincident had my docs evening watch told me. you do have skipped heart beats , i feel them. did nobody explained you you had them and what this is? I told him NO, it wasnt my heart is what my doc and cardio said. he started laughing. it is your heart , but it isnt a problem. you probably have vagus induced palps , most likely due to your stomach . that last thing he found most plausable. I told them Someone on a site on the net, DR Rane, told me more or less the same a week ago, and that I was happy about it, cause finally someone EXPLAINED what I felt. He agreed with me. Explanation is everything he said. taking the time once to explain deminish a lot of insecurity and questions he said. But nowadays its all about economics and there isnt enough time.
the pain in my chest it all went the same. Well it isnt your heart. but what it is? never any explanation.
really they think it can be costochondritis. But it wouldnt change their approach they say. its not life threatening or seen as a solution to my problem. I'm healthy for all they think and I worry to much about my symptoms. being in pain for years and not be able to do normal things when 5 years ago I was running 20 miles a week without problems or anxiety wasnt any indication for anyone to look into what has cause this drastic change? that puzzles me!!
I now work with someone specialized in anxiety issues and even she cant get a real clue if my symptoms are truly anxiety caused. There is anxiety for my symptoms. thats for sure. So it doesnt work in handling with my symptoms and probably will induce them more. I really do believe that. I really do believe anxiety can do a lot of things in your body. What I dont believe its the answer to everything I feel. its even dangerous to assume that in the future with everything I will ever feel or run into physically.
now its the skin burning. sure it can be anxiety. but is it causing it mimic it. or? I hope you can understand its not easy too believe that when all I hear ..i dont know what it is, but I dont think its serious cause of some basic reflex and strength tests. Probably anxiety. If someone says to you..I dont know what it is..and then start telling me what he think it is..and that its probably benign, I start to think.. wait a minute..you just said you didnt know??!!
I keep reading that I persue an illness. its the other way around . I want to be sure I DONT have an illness cause all is put on anxiety too fast for my comprehension. skin burning is seen in anxiety but more in attacks and not 24/7 for weeks. I also dont know whats meant with progressive. the skin burning itself progressed over my body. only very rapidly. so which progression is meant? I have this burning 24/7 . Reading a site about Small fiber neuropathy I read a lot of stories of people diagnosed firstly with anxiety or hypochondirac and so on, but in the end had small fiber neuropathy. some have pain and sensations in feet and after a while hands and legs and arms. some only have burning feelings on their skin day in day out. nothing more at first. good reflexes and strength doesnt rule out SFN. normaly SFN doenst go this fast through whole of the body but it isnt impossible and is often ideopatic then. So that means no cause found .easy explanation.
the only question I have which in my believe is merited. please tell me the difference between my burning of possible anxiety and SFN burning of the skin? my doc cant give that explanation! i know i'm a difficult guy in that perspective. I ask questions and I think. I know thats maybe not very smart to do in this situations and that its caused by maybe doubts or fear. But still I think its normal to get a good explanation.
Dr Rane does everything he possibly can on a site to do this. but he simply doesnt have the time to go into depths otherwise he would have a dayjob doing this. I understand this, but I would benefit greatly and I would nurrish any deeper explanation as icecream. for me it would work wonders. Why isnt my burning the same ? why does anxiety persist and give symptoms 4 years non stop? Why is my autonomic nervous system so sensitive. is it congenital? why is a person 5 years back running miles a day and never have any worry about his body. and is now nearly able to get through the day doing nothing? my answer is. cause I dont know what else to think. 5 years ago I didnt have these sensations and pain so I didnt have to worry. I started worrying when I starting having these symptoms So what caused the symptoms? anxiety? doesnt seem logical in my opinion. can it be anxiety ? sure, everything is possible in my book. people do die and get sick also at my age of 40
In my country and in my environment people who were really sick, terminal, got mistaken , were treated for anxiety first. when finaly came out they were terminal ill, the explanation of the doctors was.. well but he really acted extremely anxious. yeah right he or she was.. they felt something was seriously not going well in their body. I know these are extreme stories and not normal.
too cut a long story short. Everyone carries his bagage for years due to experiences in his or hers life. For me, I cant really think of anything serious that would have given me anxiety, other then that i;'ve always been a thinker. that bag of experiences also after I got my symptoms greatly determines your and this case mine conduct and believes. I quess I lost trust in my body, my self cause when doctors give you the assumption there is nothing wrong with you, but afterwards there was something (allbeit minor) wrong with you, and you have pain for years now non stop and are not the same person anymore as 5 years back and the only thing you hear. its you..its anxiety. it feels like hell. its like I on purpose want to feel like this. I'm some kind of idiot. and in my believe I just want to get rid of these symptoms and have my life back.
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