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mitral valve prolapse is destroying my life (Read 7441 times)
burak
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mitral valve prolapse is destroying my life
Jan 03rd, 2011, 3:32am
 
hello there everyone and RLR

im new and i will try to explain myself.

im 26 at the moment and i was 17 when i got my heart problems shown up. I was getting ectopics and palps when i first realized them. iwent to cardiologists (many of them) they always said nothing wrong with my heart im just panicking. then i got a real heart anxiety and many of panick attacks that my parents took me to the emergencys and doctors many many many times.Lots of test (ECG, echo, holter monitors, event recorders) they did. Always said nothing to worry about everything is fine. I went to psychologists ad used medicine for anxiety and panick attack. But the heart things always continued. And a bad shjortness of breath i was having. sometmies with the attacks sometimes all the day.

ath the end when i was 22 i went to a cardiologist again (the last one) and he said that "you got mitral valve prolapse. But nothing to worry about cause its minor. " like 1/200 or something like that as you can understand more clearly" he said. you can do everything you want even hard sport activities. You will get this ectopics and these can panşc you but they are harmless for sure. You need no medicine or somethnig else."

From this day i got better. My anxiety and panic attack nearly cures and went away. Ectopics and shortness of breath was always here but they were becoming very  very often. for 3 years eerything was fine.

On May 2010 one day i was walking to bus stop to take my girlfriend. It is some long way but i was walking that road everyday. While walking i got e real long pause that i felt like im felling down but didnt, and my head felt like its gonna blow (every ectopic felts like this but this one was really blowing head). ı stopped for a moment and then tried to go on with a bad palp. and then everything came back the bad ectopics and shortness of breath attacks. hundreds of ectopics in days and sometimes a few of them become on and on i feel like my heart is jumping in my chest (like: ectopic - ectopic - normal beat - ectopic - pause - palp...) I went to my cardiologist again and got a one day holter and 7 days event recorder. in holter results i read "premature bets and 2. level AV block". i freaked out and thought that the valve problem got worse. But my cardiologist said again the same things. Ectopics can become often thats nothing to worry about. You can do everything. He said "i can understand its scary but they will not harm you. You will panic again and again but they wont do anything. Just live with them."

   But theres something that i want to tell when i got a holter or event recorder or anything like that, these stupid ectopics dont happen like i always had. it happened once at the last time bıut it was ver very little.
i want them to happen at that time but they are resisting. Its like a joke Smiley so my cardiologist cant see my worst times.

But i have got some relief again from my last contact to my doctor. but last few months im having these night wake ups too much. and a new symptom that im feeling lightheaded most of the days. sometimes it become slowly. sometimes very sudden that i feel like im going to lose consciousness. But never fainted or felt down. Im counting my blood presure and its okay generally. Im aware of my heartbet even i if i dont touch anywhere of my body. my heart usually beats hard. But sometimes beats very low and slow. this is very annoying that sometimes beats slow-fast-slow-fast changing its speed so quickly in seconds. im getting tired so quickly. even now im getting this lightheaded feeling. like my head is giving a pressure.

Im really in a bad shape that i cant eat well cant sleep well my anxiety killing me. I cant even live a minute without it. Always all seconds counting my heart beats. I cant go to school and work relaxed. im really at he bottom. i want to go to my doctor again but i fear that if he tell me that the problem got worse. i dont know what to do really. Does this mvp can go this badly in short terms ?

sorry for this long post.

Burak


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valentino
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keep breathing and
laugh

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Re: mitral valve prolapse is destroying my life
Reply #1 - Jan 3rd, 2011, 6:43am
 
Hi burak, palpitations and ectopic beats are common with people with mitral valve prolapse and from what I read about MVP there is nothing to worry about, you are just like someone without MVP that gets ectopic beats and palpitations, you are not any worse, as long as your heart is structuraly good you will live a normal life like me and millions of other people that have the same thing.
I had ectopics since the age of 17, sometime they are less but sometime i also think that i am going to die.
Like you i get the big skip in my heart and my head for one second feels like exploding and feel like passing out but dont, its scary
i know how you feel, i know its hard but we have to believe the doctors and try to live as much as normal life as possible.
take care
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valentino
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keep breathing and
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Re: mitral valve prolapse is destroying my life
Reply #2 - Jan 3rd, 2011, 6:46am
 
check this websitee
http://www.mitralvalveprolapse.com/

valentino
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RLR
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Re: mitral valve prolapse is destroying my life
Reply #3 - Jan 4th, 2011, 6:59pm
 
Hello Burak and welcome to the forum.

I believe that I addressed this issue by way of formal response at the NoMorePanic website. When time permits, I will post a copy of my response here.

Best regards,

Rutheford Rane, MD (ret.)
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Best Regards and Good Health
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