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nitroglicerin (Read 11949 times)
shirl61
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nitroglicerin
Apr 01st, 2010, 7:39am
 
I haven't been here in quite a while, my palps had gotten so bad I wanted to die.  I can say I have no quality of life anymore.  I've had this torment for about 8 years and life as I knew it has never returned.  I'm now 48yrs old and am miserable.  Hate these things and all the worry that comes along with them.  They are evil.  That's the only way I describe them.  EVIL.

I had another stress test done the other week.  Went back for my test results last week and my cardiologist said "you're fine".  Yeah right.  He also told me to take nitroglicerin (spelling?) when I get any pains along with palps, I have had pains and and it helps.  What does that tell me?  There must be a problem if I take nitro and it helps.  So, let me get this straight---I'm on nitro and nothings wrong?  Really?

I need a cure.  That's all I need is for this torment to end forever.  I feel like I am loosing my mind.  I've already stopped living.

What is the cure?  These things aren't normal so now what?  I can't live like this, what's the use if I'm tormented every minute of every day?  What do I do?  Can someone please help me?  Apparently God isn't listening to me and believe me, I've been on my face asking to be healed.  Begging to be healed. I hate these things so bad and I hate what they've done to my life.

By the way, the nitro makes me feel much better, but now I'm afraid of taking it because the side effects can't be good.  I wonder nitro is doing to my body.  

I'm so tired of fighting this battle.
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Typer
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Re: nitroglicerin
Reply #1 - Apr 1st, 2010, 10:55am
 
Hi Shirl,

I know what you mean - I too am tired of them, and its only been 9 months or so. They just drag you down dont they. How can one function properly...its like having constant hiccups but with panic attached to it.

I want to offer you something...but am myself trying all sorts of thing.

What seems to be helping for 1/2 hour or so is drinking ice cold water.

So many people have different stories of what helps them...some have been able to rid themselves of these things after years and years.

For today, I have had about 5, in comparison to my usual 100's a day ...is it sipping iced water, or is it the homeopathic tablet I took, It is supposed to take about a week to work through and I have to say, I feel a lot better in myself. Placebo? Maybe, but until a few weeks have passed I cant tell.


I do know the more they upset me, the worse they are.

Is the nitro for the pain or the palps.

Have you tried taurine? Some swear by it.

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EDIT: Just looked that up and it seems people with angina take it before doing something that may bring on angina pain. Does he think you have angina Shirl?
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shirl61
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Re: nitroglicerin
Reply #2 - Apr 1st, 2010, 11:20am
 
Hi Typer,

Thanks for the encouragement.  I'll try the water thing ASAP.

The Dr didn't say I have angina, but he did say I have an irregular heartbeat, but nothing to worry about.  How can loosing my quality of life, due to these things, be nothing to worry about?  Both my parents died early of heart disease (Dad 44yrs old, Mom 56yrs old), so I guess he's assuming I'll have the same happen to me.  I'm just so tired of these things.  When I take the nitro, it's amazing,  I feel great for about 25 min.  I just know there is something wrong with me and the nitro helping proves it.  I just don't know what to do now.  I don't trust any Doctor, I can't trust anything they say when I know something is wrong and they same I'm fine.  Something is very wrong.

I'm suppose to take the nitro when i feel pain.  Not for the palps.

I am so so so sorry you are dealing with them.  It's mentally exhausting.  Again, thank you for taking the time to respond.

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Re: nitroglicerin
Reply #3 - Apr 2nd, 2010, 4:48am
 
Shirl, when RLR gets back, I am sure he will have some advise and maybe explain things for you. He is away till about end of April. I think he keeps most of us sane.

I know it is hard when a doc says nothing to worry about. I think they mean medically...of course we cannot help but notice and get that automated panic that comes almost without thinking.

Have you read Claire Weeks' books at all. Also, have you joined out face book palps group for a bit of support? the link is in my first post
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Re: nitroglicerin
Reply #4 - Apr 5th, 2010, 12:44pm
 
I can only say I understand , it is totally frustrating.    Have you approached your palps from the anxiety point of view,  gastric  problems?   If the cardiologist is saying there is nothing wrong with your heart you need to believe it.    

It is hard to believe anything when you are having them, but If your cardiologist has run all tests and says your heart is fine, then it isn't your heart at  fault.

If you have had no gastric issues, then it may be time to  see a therapist and sort out anxiety issues.     You are going to be fine... so please hang in there...
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If livin' don't come easy , don't stop your own voice, cause the worst part of living is having no choice. (America)
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shirl61
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Re: nitroglicerin
Reply #5 - Apr 16th, 2010, 11:26am
 
Thanks Typer and KCHendrix,

I appreciate your kindness and understanding.  I just feel like my life is really over.  

Why is this our lot in life?  I just dont' understand.  I feel like I'm being punished. I've lost my faith, my hope and joy.  

Thanks again for your support.
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Re: nitroglicerin
Reply #6 - Apr 17th, 2010, 5:47am
 
Hi Shirl
I dont think you are being punished. This is just something you need to learn to live with in order to get strong. I understand how frightening it is to suffer in this way but it hasn't killed us yet so chances are its not going to.
be strong  Smiley
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Re: nitroglicerin
Reply #7 - Apr 17th, 2010, 8:46am
 
Pitterpat,

How do you stay so positive?  You are right...these things haven't killed me yet (physically), ----but mentally I'm almost gone.  But, thanks for the encouragement.
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Re: nitroglicerin
Reply #8 - Apr 18th, 2010, 6:01pm
 
Shirl, I totally appreciate the way you feel. My family have said I look totally worn out by it all and I am.

I feel weak to say that my life feels ruined also, and it seems like all the joy and energy have been sapped right out of my life. I really do feel as you do. I admire those who stay positive and I wish I could too. But, I dont feel guilty for how I feel; it is just how I feel and from what you say, how you feel too.

But...I have not lost my fight yet and feel sure there must be a way to ease these things and not live with such huge fear.

I know someone who had these after a bereavement. They went and only come back when she is stressed. If they can go for her, they can go for us.

There is a man on the NMP forum, he had them for years...started walking 45 minutes a day and drinks one glass of red grape juice a day and his have gone...he is not sure what actually made them go, but these were his only changes.

Another person takes taurine and his have gone.

Maybe together we can try to find some relief.

Also have you read Claire Weeks' books?
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Re: nitroglicerin
Reply #9 - Apr 25th, 2010, 7:04am
 
Okay, I've read your complaint. Initially, I'm constrained to point out here that you're sort of drawing your own conclusions about the circumstances and to some extent, basing your cynicism of your cardiologist on his response to your complaint. In other words, you complain of chest pain with some of the palpitations, so he prescribes nitroglycerin and now it serves as the evidence to contradict his statement that you're fine. According to you, prescribing nitroglycerin now proves that a problem exists. This is not a very logical argument since your only basis for doing so is some awareness that the drug is used to treat persons with heart disease. We use this drug for many reasons, the greatest extent of which lies beyond your knowledge and experience with it.

I would just comment here that physicians aren't in the habit of tricking people or otherwise being disgenuine. We're not about to tell a patient that everything is fine when all along we know it to be something entirely the opposite. That just doesn't apply to physicians and there is absolutely no reason for us to do so. It's drawing the comparison between keeping a patient in the dark to prevent worry rather than explain the truth and treat the issue. This simply doesn't merit any weight at all.

It's obvious that you're frustrated and exhausted, but I will tell you that the increase in such emotions is precisely the type of response that will worsen the symptoms. There's nothing physically wrong with your heart and your cardiologist has confirmed this to be the case.

The problem here is that you're must realize that you're determined to prove that you're right and that the medical community and all the tests are wrong. You believe that an underlying condition exists which is causing the palpitations and until you come to the realization that there is no direct relationship between physical symptoms and physical disease, you won't be able to turn the corner to improvement.

The fact that you "need a cure" is what drives most patients who experience palpitations to strive for a physical cause and inquiry about a pill to make it go away. The problem is your anxiety disorder and the manner in which it rules your life. By example, you were frightened of the pain the palpitations were causing and subsequently now can't take the nitroglycerin because of the potential side-effects and what the drug may be "doing to your body."

The plain fact of the matter here is that you're afraid. You're afraid that something is dreadfully wrong with you and that life has become fragile, with caution imposed upon every aspect of life that you once enjoyed but now cannot because of the potential calamity that the symptoms could suddenly bring upon you. This is a misperception and you've unwittingly allowed it to become the pattern of your lifestyle, to which you voice frustration to the medical community for not locating and resolving what you yourself believe to be the cause. Do you not see the contradiction here?

If the tests reveal no pathology, then there is none. That's a fact and not supposition open to cynicism. Simply because your symptoms persist does not in any way mean that the problem is there but the doctor can't find it. By analogy, it's like having the engine replaced in your car because the tires are out of balance and then returning to the mechanic time and again to state that the problem still exists and you've already paid to have the engine tested four times, despite the fact that the mechanic has repeatedly informed you that the engine is not causing the problem.

The more you develop resentment over your symptoms, the worse they will become because it's not your engine. You need to come to the realization that there's nothing wrong with your heart and nothing will ever happen to you as a consequence of this type of disturbance.

You are attempting to profess the accuracy of your gut instinct over that of the medical community. You trust more in your own impression of the issue than in the expertise of those trained to deal with such matters.

If you want the circumstances to change, then you must learn to change your position on the matter. You must learn to trust in others and avoid being guided by misperceptions that are based entirely upon irrational fears and the absence of direct knowledge about the subject matter.

People with anixety disorder feel constantly afraid to take certain action for fear that movement in any direction may upset the delicate balance that exists. This is due to actions prefaced upon feelings rather than logical fact. It is the over-analysis of life circumstances to the extent that absolutely anything can result as a consequence of your decisions, most often negative consequences.

You're going to be just fine, but you need to slam on the brakes and take a look at the position you've become affixed to by comparision to the facts at hand in your situation. There is no crisis in the real sense, only that which you've proclaimed. The emotional exhaustion is not due to any real underlying crisis, but one which you've manifested and the inability to gain relief from the source you feel is responsible for doing so.

Best regards and Good Health
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Re: nitroglicerin
Reply #10 - Apr 25th, 2010, 8:55am
 
Doctor,

Thank you for responding to my rant.  I know you are educated and extremely experienced, but I don't know if you've suffered from heart palps.

Yes, anxiety is a real problem, but my Mother suffered with them and she died of a massive stroke.  She had the stress test done, was put on meds, but she died a sad death.  She lived a couple years after her stroke which was too much to witness as a daughter.  I became the Mom and she the daughter.  She lived with me until she died.  It was heartbreaking to see her paralized and unable to have any quality of life.  So yes, anxiety/anticipation of the same occuring to me is quite real.  I don't know what to do.  

As you know, those of us that suffer with these things try our hardest to cure them or have them cured.  We try everything!  But when this evil continues after all our efforts, life as we once lived it, is over.  My hope is gone.  I'm sad that this has become my lot in life.

I do appreciate your response, but unless I can find some hope for a normal life, I'm stuck.  I honestly don't know what else to do.

I've been given so many meds to try and the palps always come back to haunt me.  I'm going to stop all meds (slowly) and try to get some kind of life back.  I'm always sleepy, dizzy and not myself on meds, so that's my plan.  Stop all meds and hope I feel better.

Again, Dr.  thank you for caring about us.  I know you're retired and I am grateful that you take time for us.  I wish you could find a cure though.  

Shirl
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Re: nitroglicerin
Reply #11 - Apr 25th, 2010, 4:20pm
 
Okay, I understand your sentiments but you are making associations between your mother's condition and the presence of benign palpitations that is entirely incorrect. The factors related to the production of a cerebrovascular event or stroke have nothing to do with the presence of palpitations of the type you are experiencing and although I'm unfamiliar with your mother's case, would not have been contributory to her unfortunate demise. Certain pathological cardiac arryhthmias can indeed cause blood to pool in the heart's chambers and sometimes produce clot formation, but this is entirely separate from the type of palpitations folks are experiencing and describing on this forum. Other factors relating to blood clotting cascade play a major role in the risk of stroke.

And indeed I do not suffer from palpitations but I treated patients with them for more than 40 years. Experiencing palpitations of this type does not confer any type of advanced insight into their nature or cause, but merely the aggrevation, frustration, anger and even despondence that the condition can bring about in many sufferers. I need not experience the palpitations to have been subjected to these emotional factors by my patients, to which I have developed enough connection and empathy to create a website where they may visit to try and better understand the condition.

I trust that you find the information sufficient and you should be aware that the "cure" already exists and it's not in the form of a pill. It originates from within each of you and the road to resolving the incidence lies in your ability to better understand the nature of the palpitations rather than let your fears guide you down a relentless path that only serves to perpetuate their existence.

Best regards and Good Health
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