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Weird Arrhythmia (Read 22037 times)
Dickyboy199
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Weird Arrhythmia
Jan 21st, 2007, 5:03am
 
Hi my name is Richard and I am new to the forum.  I found it quite by chance and it looks really good.  I used to post to a forum called the PVC forum which was also very helpful but I can't seem to find it anymore.

Anyway I have been experiencing PVC's, PAC's for many years now since I was 19, I'm now 42!  It all started when I was at home recovering from a motorcycle accident where I broke my arm and hurt my knee.  I think I had also taken a bash to my chest.  I noticed a funny feeling in my throat as if I had to catch my breath, it then happened again and over the next few days happened a lot.  Eventually I realised it was my heart and it then was doing it every other beat.  I went to ER and they hooked me up to an ECG which showed all the extra beats.  The doc wasn't too concerned and said they were ectopic beats and were probably caused by the accident as delayed shock.  He prescribed Inderal, a beta blocker and within a few days they had almost gone.

From then onwards, over the years I have still always expereienced them and as you all are well aware sometimes I hardly notice them for months at a time and then other times they flare up for months, sometimes even as many as 3,000 per day!  So I have seen the docters and cardiologists countless times.  I had all the tests including echo's, 7 day moniters, treadmill, bloods, ECG and more recently in 2004 I had a TEE which is an echocardiogram taken with a probe shoved down your throat that takes images from right behind your heart.  Every time the cardiologist assures me that these are benign, my heart is structually normal and the only thing he has found is that I have a slight mitral valve regurgitation which is said is still normal AND is NOT MVP!  Which I still think it could be!

Anyway since having the TEE in 2004 I seem to have developed another arrhythmia.  I noticed my heart miss a beat, but it felt more like a PAC because there wasn't any compensatory pause and then a big thud afterwards.  Then I had a normal beat, then a very tiny beat (almost like an impulse or a twitch) then another normal beat then another PAC then maybe another one, then a normal beat then maybe a PVC with a big thud.  This then occured about four days later so I managed to get another Holter set up but of course it didn't happen while I had it on.  So I got another one set up and this time I got it recorded.  I went back to the cardiologist and he just said it was Bigeminy and that I had probably always had it but only just noticed it!  He wasn't concerned at all.

So since then over the last 2 years I have experienced these multiple beats, sometimes it lasts for about a minute with around 30 ectopics and other times it might be a run of 4 or 5.  When it happens I can tell it's this weird ryhthm because you can feel that the ectopic is different and the next beat is only a tiny one.  If you can understand what I mean.  Anyway what would normally happen is I get this happen then normally the same time the next day it will do it again, then maybe the next day for up to 3 days, then I might get it again say 4 days later and then it doesn't happen again for weeks!  I know this sounds very strange but that is whats been happening until September 2006 when it did it 6 days in a row and now more recently in December it started doing it everyday and sometimes once or twice a day.

My main concern is will the frequency increase?  Do I try and not worry about it?  Is this ryhthm just a benign runs of ectopics?  Is it because I'm getting older and it has changed?  Could it be that I have eventually weaned myself off BB's having been on them for 3 years?  I was on 5mg per day then after about a year I halved the dosage then I halfed it again and have been on 1.25mg for about 6months.  Two weeks ago I stopped taking them altogether.  I just figured that I didn't want to be taking meds all my life.

I've been to the docs and had another ECG which was fine and now I'm deciding whether to see my cardiologist yet again!!!!

Sorry for the really long post.  Hope someone can help as I'm getting so worried and really fed up with these beats.  

Best wishes to you all, it's a great site.

Take care

Rich
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RLR
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Re: Weird Arrhythmia
Reply #1 - Jan 21st, 2007, 8:07am
 
Hi Richard,

Let's see if we can separate out the issues for purposes of clarification. We'll talk about your most recent issues and then look at this from a historical standpoint. First, the cause; what you're describing is very common to persons visting or signing on to the forum. Vagus nerve stimulation, regardless of the origins of cause, can result in benign ectopic beats. The reason that they are ectopic is because the incidents represent an inappropriate stimulation of the 10th cranial nerve(Vagus nerve) and the heart is only part of the hard-wiring to which this nerve is attached. For many patients inquiring about the disorder, I've often used the analogy of a telephone system, wherein the caller mistakenly dials the wrong number. The phone system responds by sending an electrical impulse to the intended receiver and the recipient responds, despite the fact that it's in error. The process never harms the telephone or telephone system and correct calls can continue to be placed to either party.

The same is true for the heart and it will never be damaged or cause a cardiac event because of a mere inappropriate electrical stimulus of this nature. The Vagus nerve is one of the primary circuits used by the brain for initiating the "fight or flight" response. This is why people who are suddenly startled claim that their heart "skipped a beat." Sound familiar? That's because the parasympathetic nervous system utilizes the Vagus nerve to apply the brakes, so to speak, in bringing the body back down from high alert readiness imposed upon it by the sympathetic nervous system. The sympathetic nervous system accelerates heart rate and alertness, moves disproportionate blood from the extremities to the core and various other physiological changes necessary for the body to respond to a threat. It's a very ancient and basic innate characteristic in all humans and animals. The parasympathetic system does the opposite, slows the heart rate, returns increased blood flow to the extremities and other factors to bring the body back to a state of comfort. I'm reciting all of this to share with you what I believe to be possible factors relevant to the origins of your problem.

Let's pause for a moment to discuss the variants of ectopic disturbances. It is not worth your while to try and decifer whether you are experiencing PACs, PVCs, both representing forms of Bigeminy. The pattern here does not suggest pathology and that's where your focus should remain. Many patients are concerned that their disturbances will not be registered on a Holter monitor and therefore, no diagnosis possible. All to the contrary, I'm afraid. Characteristic arryhthmias are a sign of underlying pathology and not the other way around. We review diagnostics based upon algorithms that lead to the source of the problem, in your case a benign one. It's benign because it's extra-cardial in nature in this case. The Vagus nerve is simply dialing the wrong number. Incidentally, that's why you were, or are presently, able to feel the disturbances in your throat. Remember that the Vagus nerve stimulates the Larnyx, the lungs, the heart, GI tract, etc., so when an inappropriate signal originates, it doesn't necessarily end when it reaches the heart. Many patients sense their throat closing off or becoming restricted, a symptom known as "Globus," and may also feel as though they can't take a deep enough breath. All of these factors together can oftentimes bring on a panic threshold.

Frequency can be related to states of anxiety, particularly if it's associated with concerns about potential cardiac healthcare problems and the relative state of uncertainty it brings. So the more you become focused upon the circumstances, the more likely the premise that anxiety is increased, subsequently bringing symptoms as well. It's sort of a reinforcement principle at work, wherein the sufferer ruminates about possible undetected cardiac problems that set in motion a fear response. So after reading my excepts regarding the nervous system and its response to threats, what would you suppose is happening to put the system into motion? Remember that the body will respond whether the threat is real or imagined and that's a very critical concept for you to retain.

For the next point I wish to make, I'm going to have to speculate somewhat because I certainly know nothing of your history. Let's speak hypothetically to illustrate the point I wish to make here. If a person undergoes a particularly traumatic experience, then depending upon how the mind responds can make a great difference and typically weeks or months go by before anything materializes. I'm speaking of Post Traumatic Stress Disorder, which can be associated with anxiety states of great proportion. The underlying cause can often be unknown to the sufferer because of the lapse in time from the incident to the subsequent symptoms. If indeed a significant change was made in your patterns after, versus before the accident, then I would strongly urge you to look into the matter further, because it's treatable. For many sufferers of PTSD, they only know that they experience anxiety, tension restlessness and physical symptoms, but seldom realize why. Something to ponder, particularly if you can relate it to your circumstances of past and present. Otherwise, based upon tests, I'm going to concur that your heart is perfectly healthy. You have a long, long way to go.

Best regards and Good Health    
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Dickyboy199
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Re: Weird Arrhythmia
Reply #2 - Jan 21st, 2007, 12:32pm
 
Hi RLR,  

Thanks for a very thorough and detailed reply!  I think that I am just about coming to realise that the vagus nerve has something to do with the heart response and your analogy seems to describe it very well.  I know you say that I shouldn't get hung up about the type of arrhthmia, whether it be PVC, PAC or Bigeminy, but it seems that although I still get the occasionally isolated ectopic beat, most of the time it is a run of irregularity that I am now suffering from.  

The point you made about the post traumatic stress could have possibly been true soon after the motorcycle accident and obviously over the 20 odd years I have had other incidents in my life that I can attribute to stress, but they don't seem to directly relate to any increase in cardio activity.  The increase in the runs or weird ryhthm that I am now suffering has taken two years to develop into now what is an almost daily occurance.  I feel sure that when I first noticed it two years ago I was on the verge of panic and yet it didn't return that day and not until another 4 days, then I didn't experience it for weeks!

I think that what I still don't understand is why after nearly twenty years have I never experienced these runs and yet now this seems to be the main irregularity I experience and it is getting more and more frequent?  

Some other background history, I used to weight train, play squash and run regularly until 3 and a half years ago when I had such a bad experience after a run (heart palps continually for nearly 3 hours) that it scared me and put me off any form of exercise.  I haven't done anything since then!  Even though I have been told by my cardiologist that I should be and I know I should but I just don't want to go through the feeling of thumpety thump for hours after exercise.  

Do you think that these runs will eventually subside or will they increase.  I've tried coughing, running up stairs and holding my breath but still nothing will stop it once in that ryhthm.  I've even had it happen during physical exercise (loading a skip with rubble) my heart was about 100 bpm and yet it still managed to go into this irregular pattern.  Again something my cardiologist said could not happen???

I'm still hung up on why the ectopics have changed into this ryhthm.  Is it my age, lack of beta blockers, not exercising or do these things just change with time?

Sorry to still keep banging on about this!!!  Thanks again for your time and patience and valuable info.

All the best

Take care

Rich
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saab
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Re: Weird Arrhythmia
Reply #3 - Jan 21st, 2007, 2:10pm
 
Hi Rich

I was very interested to read your post as it is very similar to my own experience. Two and a half years ago I had an operation and was quite ill afterwards - due, I felt, to the general anaesthetic. When I was seeing my GP about a week later she was so concerned about my pulse that she sent me to A and E (the ER as you call it). After an overnight stay and ecg's, blood tests etc. I was told that I had multiple ectopics, but it was nothing to worry about. Although I was initially relieved about this, I quickly became consumed with anxiety about my health and specifically my heart. I was at times paralysed with anxiety, suffering panic attacks, almost agoraphobic, terrified that I was about to drop dead. After a few months I went back to my GP who sent me for another ecg - again this was fine. Still I worried. About a year ago I had to have another (unrelated) operation - got through this fine and made a good recovery. And yet, like you, I still have a deep seated belief that I am ill. When I am anxious I take my pulse - usually it is fine, which reassures me, but on occasion I can feel 'missed beats' - of course I then feel worse.  

Again like you, I have been avoiding strenuous exercise after an exercise session when my pulse seemed to race for several hours afterwards. Occasionally, I feel a strange feeling in my chest but usually these ectopics or missed beats (are they the same thing?) go unfelt unless I am taking my pulse.

I can only say that I know exactly how you feel - I guess we both have to accept that in reality our hearts are fine. I have found this site and it's predecessor to be a great help and RLR's info has gone a long way to helping me understand the causes of these things. I am much better than I was - still worrying, but trying to get on with my life.  I too had hoped that the ectopics would eventually disappear but that doesn't seem to be the case with me. I have found books on Cognitive Behavioural Therapy to be helpful - basically, my logic and common sense go straight out the window when I start worrying about my heart and CBT exercises help me to be more rational about things. When I was really anxious 'Self Help for Your Nerves' by Claire Weekes helped a lot. It sounds old- fashioned but it's an excellent book - she talks about the vagus nerve and it's effect a bit too.

I am trying to accept that these ectopics mean absolutely nothing and are not a symptom of anything, but it's difficult at times. I guess we are in the same boat in that respect.
Anyway, welcome to the forum and I hope you feel better soon. RLR - thanks for all your advice, it has been very reassuring to read your answers both on this and the previous forum.




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Re: Weird Arrhythmia
Reply #4 - Jan 21st, 2007, 6:16pm
 
Okay, I want to be certain that we understand here that bigeminy and trigeminy are forms of PACs and PVCs, but we're talking about the same thing in general. The pattern of the ectopics as they superimpose upon normal sinus rhythm establish the variants described, but it's all within the same general category. That is why I suggested that you refrain from trying to particularize the events, possibly mistaking them as "something different" based upon the way they feel. If you've read my postings entitled HEART PALPITATIONS 101, there is a section where I discuss the timing of the ectopics and how they can be sensed differently based upon their introduction during normal sinus rhythm. If an ectopic occurs during ventricular depolarization, it can sometimes be rather dramatic depending upon how close or how distant it occurs from ventricular re-polarization. Sometimes, patients describe the events as "small" or "faint" because they actually can occur near-simultaneous to normal ventricular rhythm. In fact, the events themselves are extremely similar, but because of when they occur, they can be felt differently as it often causes the heart to feel as though it stumbles or flutters.

Patients have also described instances where it feels as though the heart has briefly paused altogether, sending them rushing for security and safety. This is simply due to the senses being altered and one's own perspective that may be misguided regarding what is actually occuring by comparison to what the patient "feels" is happening. In my postings, I used the example of two dancers, one with two left feet and the other with smooth, predictable moves. When a bad dancer tries to mix with a good one, the effects will often disturb the natural rhythm of both dancers momentarily. So regardless of the fact that stimulation from the Vagus nerve is more of a constant value, the timing with which it appears can make the experience either mild or dramatic. Does that make sense?  

I also want to ask whether you're experiencing any GI symptoms such as acid reflux, indigestion, increased peristalsis, bouts of diarrhea or constipation, or other changes in bowel habits? This is very important with regard to what is taking place, which by the way I'm still convinced is non-pathological. In other words, despite your concerns which are very valid indeed, the pattern here rings very true for an anxiety-related disorder with somatic features.

Changes in exercise and medication will certainly go a long way to making you feel that things are getting worse, but not for the reasons you may think. A reduction in activity that reduces stress, permits it to remain at higher levels and many times causes a reduction in quality sleep. The beta-blockers, whether you may realize it or not, also have a mild anxiolytic effect along with helping to maintain regular sinus rhythm. So I would suggest here that a reduction in exercise and therapeutic agents that were diminishing anxiety symptoms has brought about the notion that something may be getting worse. Well, the symptoms of anxiety may well be increased, but again the symptoms are in no way suggestive of a looming and undetected cardiac pathology.

There are, however, several things to have checked and it's highly likely that your primary care physician or specialist has already done so, but we'll mention it here nonetheless. Although it's more common in women than men, thyroid values are very important to consider when this type of symptom persists to the extent you describe. But in most all cases, changes in thyroid function have a direct relationship upon weight. So if no striking changes have been observed in that regard, then it's unlikely but should be checked nevertheless and a simple blood test for pheochromocytoma will rule out the possible presence of benign tumors on the adrenal glands that can also cause similar symptoms. I will be frank here and tell you that I would be surprised if the tests turned up positive, because in both disorders described, the effects upon the heart are typically far more dramatic.

From another perspective, I suppose I don't have to state here that you need to refrain from any type of stimulants, ie coffee, tea, smoking, energy drinks and so forth. In the presence of a sensitive nervous system, these agents can all have a tremendous effect on the potential for palpitations to occur. In all cases they are considered contributory. I also want to state here that many patients avoid the use of medications because they associate them with the aging process and worries about habituation or withdrawl are most always second on the list. These notions more often than not, represent a challenge for healthcare professionals when trying to distinguish efficacy of prescribed drugs over time. Patients infrequently take them according to direction and often change dosing schedules because they associate symptoms with medications rather than the underlying cause.

I've been at this profession for more than 40 years and certain characteristics remain common for a great number of disorders. My impression is that were dealing with an anxiety disorder. It's also important to consider present life circumstances relative to your symptoms, ie loss of marriage partner or loved one, divorce, failed business enterprise or looming financial problems. All of these examples can have a tremendous impact on chronic anxiety levels.

Best regards and Good Health

     
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Re: Weird Arrhythmia
Reply #5 - Jan 22nd, 2007, 9:35am
 
Hello

Just to say I know how you feel, but I have to say sometimes I am mistaken for what is happening, if you have wind trapped in your chest it can give a simular feeling as palpitations.  Often when I've made my hubby listen to my heart (I know a bit too obsesive) and had a weird sensation he says my heart is beating fine but he could hear bubbling in my chest.  

Try to relax I know it's hard, I'm gettings lots of palps at the moment but then I have a sore throat and feel like I've got a but of a head cold, so thats probably why.

You are still here and Rich you've had them for what 20 years! and  your still here, so relax.

I think the CBT and relaxation tecniques is a good step forward, and maybe even counselling, my eptopics/palps got worse after my 3rd child and my c-section with her was very traumatic, basically they didn't give me anough local, so I felt every snip, poke, knife cut and every stitch inside out, it was horrific.  So get some help.

Hope you feel better soon.

Hi saab gather your from the UK to?

Kath x
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Re: Weird Arrhythmia
Reply #6 - Jan 23rd, 2007, 12:50pm
 
Hi Saab, Kathryn and RLR,

Thank you all for your valued comments they are all very helpful and I been trying to think differently about what I'm experiencing.  Yesterday was not very good as I had a few extra beats in a row in the morning, at lunchtime (before lunch) I had the multiple ectopic ryhthm, then at 5 ish I had it again and then I had a short run of ectopics just before I went to bed!!  Quite worrying really.

Some more background information.  I do actually feel every irregular beat, unfortunately!  When I feel a fluttering in my chest or throat or it takes my breath away and sends adrenalin surging round my body I always check my pulse in my neck and you can feel the irregular pulse the same time as I can feel it in my chest so that's how I know it is definitely my heart and isn't wind or gastric upset.

I used to suffer from IBS about 10 years ago however it is well under control now and I know the foods that give me a reaction and generally I avoid them.  I haven't had any change in bowel habits for quite a few years.  I suffer from slight wind occasionally but no other unusual upsets or indigestion. I am aware of the foods that can aggrevate ectopics and have avoided them for years.  I don't drink coke, caffeine, hardly any alcohol, I don't smoke and I try to avoid spicy foods and chocolate although these two are harder as I love them both!  I try to drink lots of water, however just recently I haven't been doing very well.  I haven't taken any BB's for over two weeks now, I may have mentioned that already.

I have a history of anxiety and an isolated phobia.  I used to be a bit of a hypochondriac but tend to be more level headed nowadays EXCEPT where it comes to my heart because it is so real and so frightening when it is beating irregularly.  I know that now told you that you will all think it is definitely all just anxiety and I shouldn't worry about it.  This is what my wife keeps telling me.  She is so fed up with hearing me banging on and on about how many times my heart has done this and when it did that and how many beats it did this and so forth!  

We've had some family upsets last year with my mum and also with my wife's father, we also fell out with some long time good friends back in November.  But even though logically I know we have been under some stress I find it hard to relate it directly to the changes in my heart because the arryhthmia I am experiencing now has only just recently happened just over two years ago and the 'normal' ectopics I am used to I've had for nearly 24 years!!  The frequency in which this new ryhthm has increased is so strange too.  For nearly two years it has been very occasional then nearly every day since before Christmas it has happened at least once. Yesterday was 4 times and so far today it has happened at lunchtime.

There are so many occasions where I have been under much more considerable stress in the last 20 years and it has not always directly affected my heart.  I did read that multiple ectopics are more dangerous than isolated and of course that worries me even more.  I don't seem to have that many isolated ones anymore just runs of them.

Thank you all for your reassuring posts.  RLR, I can understand a lot of what your saying and I agree with most of it, but the thing I can't seem to make any logical sense is why would this ryhthm come out of the blue like it did and now it is progressively getting worse?  Will it get anymore frequent?  Could it turn into a dangerous arrythmia?  Was it the TEE that caused it as I have read that a side effect of this internal echo is abnormal beats?

I'm seeing the doc on Thursday and I shall discuss whether she will take bloods for Thyroid check etc.  

Thanks again everyone for your advice it has been really helpful

Best wishes

Rich
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saab
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Re: Weird Arrhythmia
Reply #7 - Jan 24th, 2007, 2:16am
 
Kathryn - yes I am from the UK, I came to this site through the Nomorepanic web site. If you haven't visited that site Rich, you may find it helpful. It's got lots of advice and support for anxiety, panic attacks and health anxiety. What it lacks is RLR to give some medical insight and explanation. I have multiple ectopics and have been told they are nothing to worry about - usually I don't feel them, though occasionally they are there when I take my pulse. The hardest thing for me has been that I used to be a very sensible, logical person who could cope with stress well. Even at the most stressful times I would just pull myself together and get on with it. Since I had the overnight in A and E and ectopic diagnosis, my logic has deserted me. I just cannot look at my health rationally anymore. 'Pulling myself together' didn't work. Occasionally recently I have felt a 'flip' or 'flutter', in my chest, but usually I am not even aware of these ectopics - and usually my pulse is fine. In two and a half years I have had no other symptoms - no dizziness, no blackouts, no faintness. And yet... in the back of my mind I still think there is something seriously wrong. Reading RLR's comments has helped. I was given no info at the hospital other than 'you have multiple ectopics, but you're fine, you can go home'. One doctor did say that what was a bit unusual was the place in the heart where the extra beats were originating.

I am much better than I was - I literally used to spend the day on the settee paralysed with anxiety thinking I was going to drop dead any second - but I am a different person to how I was before my first operation and the ectopics. I don't have panic attacks anymore, but I worry about everything more now. My head also has a slight tremour all the time now, even when I'm not feeling anxious, though it gets worse when I am really anxious.

The crazy thing is that there are thousands of people who would love to have ectopics as their only health problem. I have a wonderful family and everyday used to think how lucky I was and how blessed. My heart anxiety has taken away that carefree feeling.

Sorry for rambling on. What I have found useful is making up a folder with all my CBT notes and print outs of RLR's Palpitations 101 and some of his other comments and explanations (including his response to your original post). I keep my Claire Weekes book there too. Then, when I am having a bad spell, I get RLR's stuff out and read it, especially the bit about tests looking for underlying things wrong that would cause ectopics - after blood tests and ecg's I have to accept that they have found no underlying illness or defect and the ectopics are therefore harmless. Best wishes.


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Re: Weird Arrhythmia
Reply #8 - Jan 24th, 2007, 12:58pm
 
Hi Saab,

Thank you for your encouraging posts.  I came to this site via the nomorepanic website too.  I used to write on a site called the PVC forum but I cannot find it anymore.  I agree entirely with what you say and I too cannot help thinnking that there is something seriously wrong.  When I read these sites and posts it is so encouraging and I think to myself what am I worrying about I'm fine I can go and do anything and sod these ectopics.  Then a day or so later when I get a multiple run of them I think oh my god how long have I got!  It's so hard on us all especially when I have a lovely wife and four lovely children, my youngest will be 2 next week.  You can't help thinking am I going to be around when they are all older or grown up even!  It's not a very nice thought.

But I must admit it does help to read the posts here and on the nomorepanic forum.  I've even got both of Claire weeks books too! Not to mention about another 30 self help books ranging from self hypnosis to anxiety and depression!  I just wish I didn't feel these things but unfortunately I must feel nearly every one.  You are lucky in a way that you don't often feel them except when you take your pulse.  But it does put it into perspective when you see and hear about so many unfortunate people with really delibilating diseases and all we can complain about is a flippy floppy feeling in our chests!!!!

I took your advice and re-read RLR's posts and I'm going to print them out as you have so I can read them when I'm having a particularly bad day.  Right I'm going to play my guitar for a while now and try and relax.  Take care

Best wishes

Rich

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Re: Weird Arrhythmia
Reply #9 - Jan 25th, 2007, 4:43am
 
Hope you feel better soon, Rich. I am having a bad spell at the moment, whereas before Christmas a had a couple of months where I wasn't very anxious about my heart at all. I know what you mean about your family though - now I have two small children everything seems so much more precious. Sat on the sofa last night feeling lots of 'flips' in my chest. Went for a brisk walk today with a friend - over an hour - felt tired, but no chest sensations. My husband thinks I sometimes just get 'tuned in' to my heart and feel things that I otherwise wouldn't notice. They could be ectopics or they could be indigestion. It's just hard to convince yourself that even if they are missed beats, it doesn't matter. My heart is structurally sound and ecg's haven't found anything so I can only try to accept what I have been told - I am fine. You have had a lot more tests than me, Rich, and I do think that in spite of the NHS being poor a lot of the time, they do seem quite thorough about checking out anything that seems unusual. Best wishes.
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Re: Weird Arrhythmia
Reply #10 - Jan 26th, 2007, 2:29am
 
Hi Rich
My name is carol and i know how you are feeling i have had missed beats for 8 months now every day!
Have had 24 hour tape and ecgs  and an echocardiogram and all they can say is  yes i am having loads of missed beats but they are not sinister.  It is so hard to get your head around there is nothing wrong with your heart   they keep saying its anxiety etc   but i feel its these things that give us anxiety
It certainly changes you i will agree You can be having a lovely day then bang a run of these comes along and it just makes you edgy and worried.   I am still awaiting all my blood test results and if they are clear i will  have to be strong and deal with them.  Hopefully we can all support each other on this site and rlr is great when times are really tough  
Just hang in there    take care carol Smiley
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Re: Weird Arrhythmia
Reply #11 - Jan 26th, 2007, 4:26am
 



I guess anxiety does cause missed beats, palpitations etc., because you are releasing adrenaline, but I can feel missed beats in my pulse when I'm not feeling anxious (RLR has explained somewhere about this) and can feel anxious and my pulse be fine. I wasn't health/heart anxious until I found out I had multiple ectopics. They have been the source of two and a half years of anxiety and panic attacks, though I'm much better than I was. I am not even sure what tests I had whilst in A and E - ecg's I guess, and blood tests, but I don't remember if I had an echocardiogram, though I was on a monitor overnight. I take comfort in what RLR says about the tests though - it doesn't seem to matter if they don't catch the ectopics/missed beats etc., they are checking the overall performance and structure of your hearts (looking for defect or disease I suppose). If this is ok and your heart function is fine and they can find no underlying cause of the ectopics, then there isn't really anything to worry about. If they were worried they would put us on on medication or ultimately suggest a heart pacemaker - I am sure that if there were anything fishy it would be investigated further. See, when I type this out it all sems so logical - yet I can't quite get it through my head that I am fine! Best wishes.
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Dickyboy199
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Re: Weird Arrhythmia
Reply #12 - Jan 28th, 2007, 1:05am
 
Hi Carol,

Thanks for writing, you must be going through hell having them for 8 months.  I know what you mean by having good days and bad days.  I seem to relate everything to what my heart is doing so if I don't feel any for days it's really great and then, as you say, you can be having a lovely day with the family somewhere and bamm here we go again, lots of ectopics.  I then go on a real downer, think I'm a gonna and get really depressed, which spoils my day.

At the moment, as you will see from my posts I seem to be having just runs of them and not many isolated.  I'm tending to get a run at least once a day and to me this is something that has changed even from two years ago and so I'm now going back to my cardiologist probably for the 6th or 7th time in 8 years!  My doc didn't really want me to go back, she gave me an ecg, said it was 'plum' normal!!and then said what did I want to do about it.  Reading all the past letters from the cardiologist on the computer which all say benign ectopics, she really doesn't see that there is any point!

But I just want to know why it has changed and if this is still normal and benign.  Obviously it's sort of reassurance again I am looking for which helps a bit but we still have to put up with these darn things and all the other sensations that go with them.  I do have to agree that it must be anxiety and it is easy to say that when you are sitting calmly and not experiencing anything.  But when it's happening I agree with you Saab all logic goes out of the window.

Take care both of you and thanks for the posts

Hopefully we can all support each other with our stories.  At least if I'm writing on here my wife won't have to hear me going on so much, which will please her!

Best wishes

Rich
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Re: Weird Arrhythmia
Reply #13 - Jan 28th, 2007, 3:01am
 
Hi again.

If your doc and cardiologist have said there benign then you should take comfort in that.  When all this not started but when I started to take more notice of them, I used to do what I had to and then spend most days in the armchair scared to move in case I had a wierd beat of sensation.  When I saw the consultant at the hospital after I'd had my 24 hour ECG and Echo, whilst I was waiting my heart was pounding I couldn't breathe properly my heart was racing, but as soon as I walked out and he'd said it was benign and for me to calm down and relax, I walked out 1/2 hour later feeling so much better, which proved my thoughts and worry about what he may say had caused all those prevoius symptoms.

Yes since then as you will see I still post here worried, but I'm not as bad as I was not at all! I used to get lots of missed beats through out a day everyday for days, but now I do get pounding, (palpitations ) sorry I'm so confused over what terminology means what! and racing heart and occasionally a missed beat.  When I'm feeling as I am now, I feel it will never end and I'll never feel better, but once again I am not thinking logically, I'm telling myself and enhancing the whole situation alot more.  I know it's hard and you may have already but try to accept that this is how you are and this is how your body responds, Your heart is fine, try to enjoy life and not worry so much, I know how hard that is trust  me I've been there and I still get like it now, but not as frequent.  It does get better honestly, I've tried to accept that I will always be like this.

I have the answers in my head, but I still post here for reassurance, which probably drives RLR crazy! As he's told me lots of things over and over.  but by him doing that I feel so much better, even just sharing your experiences on here and having others reply is a great help to realise your not alone.

I think your absolutely fine, you may not feel it but you are, and it is scary when you get a new sensation or something happens more than it used to, you instantly need to know thats normal, look at me I posted as I was getting a ache, that was a little new for me, so wanted reassurance, which you kindly gave.

Hope you feel better, try and get some sleep yourself today, tiredness just makes things alot worse!

Kath x
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cazza
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Re: Weird Arrhythmia
Reply #14 - Jan 28th, 2007, 4:04am
 
Hi Rich
I think if we could find a doctor that suffers with these they might appreciate how much affect they can have on your life.  Only people like us that have them all the time whether happy sad relaxed stressed etc now how they change you     I really feel they should be more help on how to deal with them
sorry for ranting    take care  carol
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