angiebaby
Gold Forum Member
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Posts: 261
england
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Hello only me. Been to see the neurologist today and he thinks that i've got something i don't know how to spell so please excuse me. It sound like 'kiara malformation', sounding as 'key-arrhh-a'. I know how it sounds but not how to spell it and can't find any information about it on the net. He had my neck x-ray results and my neck is not in the normal shape, i was told that i had a curvature but insted of the normal shape mine sticks out at the bottom and then goes perfectly straight, looks very strange on the x-rays. Any way, going by my symptoms and feelings that i was having, and also the x-ray, he showed me the bottom of the brain and the start of my spinal cord and he said that my brain goes down too far, does not end when it is supposed to, so he thinks that the bottom of it is getting trapped repeatedly and causing my symptoms. He also said that there are two points in life when this is more likely to make an appearance, seeing as i have been 'born' with this. At the end of teenage years and coming up to forty, he said i am the perfect age for this being nearly 37. There is an operation if really needed but i am now waiting for a brain and neck scan to determine things for sure. He did all the tests, pulling and pushing and eye sight checks etc, etc, and i have got a weakness in my right arm, which i can definatly feel and my left arm is shaking inside? My legs are fine he says. Anyway the MRI scan could take 8 to 12 weeks to get so now i just have to wait. I am happy that he said he's seen this before and had people with the same symptoms, this means i'm not alone. I am also pleased that he was a very nice consultant and listened to me and 'believed me', until after he'd done his tests where then the obvious physical symptoms confirmed things. At least someone has listened and has backed up what i am feeling, i know i'm not mad and these things are actually happening to me. I am a little nervous of the scans although i mentioned about not wanting the dye injected and he said i did not have to have the dye, unless they find something that needs more investigating. So there you go and i was wondering if you knew about this condition and could please give me some advice. Before i left him i asked if there was any exercises that i could do to improve or help things and he said we will have to wait for the brain scan. I have tried to look up on the internet to see if there is any advice, a support group perhaps, but with not knowing the exact name i cannot get anything up. Thanks for reading my 'long' post and any advice would be gratefully received. Angiebaby.x
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