Hi..  I am not trying to me manipulative in any way.  That is not the kind of person I am.

I continue to go through all this....

First, my Brain MRI showed no changes from the last MRI's.  I am definitely hesitant on the MS Dx as well, even though all my MRI's say "Suggested or I do have MS"...

The Patterns I ha e notices is :  

-- All my attacks start out with severe (foul smelling diahhrea) multple times a day..  This has caused me in the past and currently causes me to lose weight as it seems when I eat the food isn't being absorbed.

-- I notice then that my heart rate is extremely elevated.  I wake up at 2:45 am every mornning, sweating.  And my heart is elevated in the 150's just standing...  My Blood pressure is high as well and normally it is 100/60.  My pulse is normally around 85. I had this happen with my other 2 attacks.

--  I know I am not a Dr but it seems that whatever this is is affecting my Autonomic Nervous System.  My body is doing things in reverse.  For instance, I feel hot in the cold and cold in the hot.  My body burns, my muscles twitch and its like my adrenaline is constantly high even at rest.

I take anti-axniety medicine and even take 2 mg of Xanax at bedtime and still wake up at 2:45 am.

I am not trying to exhaust you or be manipulative.  I am looking for help and I have seen Dr's who can't figure this out....  Other than tell me I have MS, but they do not treat me for it.

Whatever this is,  I have had before.  it effects my entire body.  

2 years ago my Neurologist mentioned Whipples Disease.  It's RARE.  Could this be a possibilty?  I am not looking for a Dx as I know you can't do that, but am looking for any suggestions so I can get help.

From a psychiatric standpoint I am thinking positive, trying to stay busy, continue with my housework, take care of my children, etc.... I take the Xanax every 4 hrs and it doesn't help with these symptoms..  

Is there a test that can be done for Whipples?

Would a Cortisol test be of any benefit to see if I have too much adrenaline circulating?  It's like my body is in constant Fight/Flight mode.

When my pain sensations come back I get severe pain in my head like a bad migraine every day since the diahhrea started, pain in my joints, etc..  

I appreciate all your help and going above and beyond what this forum exists.

My Echo/stress was good, so does that mean that no matter how fast my heart beats and when my blood pressure increases with it, that I am not at risk?

Why would all this effect my CNS?  

I know I have exhausted you with this.  But RLR I do not know what I can do anymore?  I have seen counselors, CBT, Psychiatrists and I really do feel at lost....  I guess I keep coming here because you were a Neurologist for many, many years and I know you know your stuff and also know a lot about the heart.....

I want to be healthy so bad and don't want my kids to continue seeing me go through this.  I know I keep asking the same questions...  I am sorry for that...  What CAN I do?? I do not want to continue to go through this and I really am scared to die.  All this has my own Drs baffled and this is what scares me.

Stephanie

Hi Chris,

I know about health anxiety.  I use to be the biggest hypochondriac.  But this is not health anxiety at all...

I have been through these attacks before and I have seen Psychiatrists, counselors, etc and tried various meds, which have absolultely no effect on my brain...

I know RLR has tried to reassure me, but honestly if you knew what I was going through I don't think you would think it was health anxiety at all.  it's awful...

I have had anxiety, depression before.  This obviously makes me very depressed...  

I know there is something going on in my body...  I keep losing weight even though I am eating...  I can't feel sensations of pain most of the time, and I already posted most of my symptoms....

I do not want to go through this for another 4 months.  these attacks last for months and I want soo very badly to feel better...

I had 3 Neurologists now tell me its MS, but they will not treat me because my MRI's remain stable....  

I do understand that I have Anxiety and I know RLR is right about that.  I do not question that at all.  I have always been a very anxious person.

But when I go through these attacks, they literally effect everything in my body.  I won't go over all the symptoms again and again.

Most bothersome is that my heart rate is elevated most of the day (but moreso when I wake up at 2:45 am and will continue on until around noonish) and rates at 160 bpm with blood pressure elevation.  When this happens I feel flush, my reflexes feel gittery and the only thing that helps is to lay down....  

Right now, I feel emotionally NUMB.  I am scared even if I don't feel it outright.

I take 2 mg of Xanax plus 30 mg of Temazapam to sleep and still wake up at 2:45 am.  I am tired of all this and am trying to get on with my life.

I want to feel better and not go through this again for MONTHS.  I have seen psychiatrists, tried anti-depressants, etc and nothing helps.  So to go through all this and be told, its conversion disorder is upsetting to me.  I know my body and I know it well.

I get conflicting info from my Dr's.  Most say MS, but since my MRI has been stable they will not treat me.  I am not scared to have MS.  At this point I don't care what I have, I just want to feel better....  I want to feel my sensations again and my emotions...  I feel at lost.....

I want to live my life and get on with it.  Again, I have 3  children whom I love and I don't want them to see me go through this.  This is not something  I can control or believe me I WOULD.

I know whatever this is, it effects my entire body.  Like my body does thinsg in reverse.  Hot cold off..  sneezing reflexes are not there when I feel the urge to sneese, continued Diahhrea, loss of weight (down to 115 lbs and I am eating), loss of hunger, etc etc.  Again I am explaining my symptoms.  It's like my body is in constant flight mode.

And when I tried various meds that should have an effect I feel no sensations of taking the meds.  I know this all sounds crazy.  It sounds crazy to me, but I am telling it how it is and I am looking for help.

My Dr's are baffled, which makes me think this is something rare.

When not going through these attacks, I live a normal life, am active with my children, working, camping, fishing, love music and life in general....

So that's all I can say.....  I appreciate the feedback...